The Patient: Patient-Centered Outcomes Research

2008 - 2012

Edited by John Bridges, PhD, Christopher I. Carswell, MSc, MRPharmS

from Springer Healthcare | Adis
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Volume 5, issue 3, 2012

Practicing Patient-Centered Care: The Questions Clinically Excellent Physicians Use to Get to Know their Patients as Individuals pp. 141-145

Laura Hanyok, David Hellmann, Cynthia Rand and Roy Ziegelstein

Comparison of Expected Outcomes between Patients and Neurologists Using Kano's Methodology in Symptomatic Migraine Treatment pp. 147-162

J. Matías-Guiu, M.T. Caloto and G. Nocea

Psychometric Evaluation of an Inpatient Consumer Survey Measuring Satisfaction with Psychiatric Care pp. 163-173

Glorimar Ortiz and Lucille Schacht

Patients' Perceptions of the Interpersonal Sensitivity of Their Healthcare Providers: The Potential Role of Patient-Provider Racial/Ethnic Concordance pp. 175-183

Karon Phillips, David Chiriboga and Yuri Jang

Estimating Preference-Based EQ-5D Health State Utilities or Item Responses from Neuropathic Pain Scores pp. 185-197

Ning Gu, Chris Bell, Marc Botteman, Xiang Ji, John Carter and Ben van Hout

A Pilot Study to Identify Areas for Further Improvements in Patient and Public Involvement in Health Technology Assessments for Medicines pp. 199-211

Josie Messina and David. Grainger

Volume 5, issue 2, 2012

Seeking What Matters: Patients as Research Partners pp. 71-74

Musa Mayer

Patient and Public Involvement in Developing Patient-Reported Outcome Measures: Indispensable, Desirable, Challenging pp. 75-77

Oliver Groene

Patient and Public Involvement in Patient-Reported Outcome Measures: Evolution Not Revolution pp. 79-87

Sophie Staniszewska, Kirstie Haywood, Jo Brett and Liz Tutton

Cognitive Testing and Readability of an Item Bank for Measuring the Impact of Headache on Health-Related Quality of Life pp. 89-99

Diane Turner-Bowker, Renee Saris-Baglama, Michael DeRosa and Christine Paulsen

Designing Family-Centered Male Circumcision Services: A Conjoint Analysis Approach pp. 101-111

John Bridges, Sarah Searle, Frederic Wolfgang Selck and Neil Martinson

Content Validity of Visual Analog Scales to Assess Symptom Severity of Acute Angioedema Attacks in Adults with Hereditary Angioedema: An Interview Study pp. 113-126

Carolyn McMillan, Jane Speight, Anurag Relan, Luca Bellizzi, Gerald Haase and Marco Cicardi

Assessing Stakeholder Opinion on Relations between Cancer Patient Groups and Pharmaceutical Companies in Europe pp. 127-139

Susanna Leto di Priolo, Andras Fehervary, Phil Riggins and Kathy Redmond

Volume 5, issue 1, 2012

Patients' Perceptions of Sharing in Decisions: A Systematic Review of Interventions to Enhance Shared Decision Making in Routine Clinical Practice pp. 1-19

France Légaré, Stéphane Turcotte, Dawn Stacey, Stéphane Ratté, Jennifer Kryworuchko and Ian Graham

Test-Retest Reliability of an Interactive Voice Response Version of the EQ-5D in a Sample of Cancer Survivors pp. 21-26

J. Lundy and Stephen Coons

Re-Engineering the Post-Discharge Appointment Process for General Medicine Patients pp. 27-32

Robert Chang, David Spahlinger and Christopher Kim

Patient Preferences for First-Line Oral Treatment for Mild-to-Moderate Ulcerative Colitis: A Discrete-Choice Experiment pp. 33-44

Paul Hodgkins, Paul Swinburn, Dory Solomon, Linnette Yen, Sarah Dewilde and Andrew Lloyd

A Comparison of Analytic Hierarchy Process and Conjoint Analysis Methods in Assessing Treatment Alternatives for Stroke Rehabilitation pp. 45-56

Maarten IJzerman, Janine van Til and John Bridges

Burden of a Multiple Sclerosis Relapse: The Patient's Perspective pp. 57-69

MerriKay Oleen-Burkey, Jane Castelli-Haley, Maureen Lage and Kenneth Johnson

Volume 4, issue 4, 2011

Acknowledgment pp. 205-206

Adis International Limited

Societal Values in the Allocation of Healthcare Resources: Is it All About the Health Gain? pp. 207-225

Tania Stafinski, Devidas Menon, Deborah Marshall and Timothy Caulfield

Treatment Satisfaction Instruments for Different Purposes during a Product's Lifecycle: Keeping the End in Mind pp. 227-240

Diana Rofail, Fiona Taylor, Antoine Regnault and Anna Filonenko

Offering Results to Participants in a Diabetes Survey: Effects on Survey Response Rates pp. 241-245

Jeanette Ziegenfuss, Nilay Shah, James Deming, Holly Van Houten, Steven Smith and Timothy Beebe

Estimation of Utilities in Attention-Deficit Hyperactivity Disorder for Economic Evaluations pp. 247-257

Andrew Lloyd, Paul Hodgkins, Rahul Sasane, Ron Akehurst, Edmund Sonuga-Barke, Patrick Fitzgerald, Annabel Nixon, Haim Erder and John Brazier

Comparison of Scores Derived from the Box Score-11 Scale and the Pain Attribute of the Health Utilities Index-3 pp. 259-265

Michael Iskedjian, Barbara Jaszewski and Olivier Desjardins

Can Patients Diagnosed with Schizophrenia Complete Choice-Based Conjoint Analysis Tasks? pp. 267-275

John Bridges, Elizabeth Kinter, Annette Schmeding, Ina Rudolph and Axel Muhlbacher

Volume 4, issue 3, 2011

Exploring Qualitative Research Synthesis: The Role of Patients' Perspectives in Health Policy Design and Decision Making pp. 143-152

Helle Hansen, Eva Draborg and Finn Kristensen

Integrating Evidence and Individual Preferences Using a Web-Based Multi-Criteria Decision Analytic Tool: An Application to Prostate Cancer Screening pp. 153-162

Michelle Cunich, Glenn Salkeld, Jack Dowie, Joan Henderson, Clare Bayram, Helena Britt and Kirsten Howard

Elicitation of Ostomy Pouch Preferences: A Discrete-Choice Experiment pp. 163-175

Ole Bonnichsen

Establishing the Content Validity of the King's Health Questionnaire in Men and Women with Overactive Bladder in the US pp. 177-187

Mary Margolis, Vasudha Vats, Karin Coyne and Con Kelleher

Impact of Walking Impairment in Multiple Sclerosis: Perspectives of Patients and Care Partners pp. 189-201

Nicholas LaRocca

Medication Non-Compliance in Zagreb, Croatia pp. 203-204

Marcel Leppée, Josip Culig and Jelena Boskovic

Volume 4, issue 2, 2011

Patient Advocacy in Research: Merely an Afterthought? pp. 69-71

Musa Mayer

Analysis of Health-Related Quality-of-Life Instruments Measuring the Impact of Bariatric Surgery: Systematic Review of the Instruments Used and their Content Validity pp. 73-87

Raed Tayyem, Abdulmajid Ali, John Atkinson and Colin Martin

Great Expectations: What Do Patients Using Complementary and Alternative Medicine Hope For? pp. 89-101

E. Ernst and S.K. Hung

Impact of Gastrointestinal Problems on Adherence to Low-Dose Acetylsalicylic Acid: A Quantitative Study in Patients with Cardiovascular Risk pp. 103-113

Christina Moberg, Jørgen Naesdal, Lars-Erik Svedberg, Delphine Duchateau and Nicola Harte

An Instrument to Assess the Needs of Patients with Type 2 Diabetes Mellitus for Health-Promotion Activities pp. 115-123

Anneke van Dijk-de Vries, Inge Duimel-Peeters and Hubertus Vrijhoef

Eliciting Preferences for Reimbursed Drugs Selection Criteria in Côte d'Ivoire pp. 125-131

Vakaramoko Diaby, Henri Dié Kakou and Jean Lachaine

Persistence with Prostaglandin Agonist Use with and without Adjunctive Therapy for Glaucoma Patients: A Canadian Population-Based Analysis pp. 133-141

Michael Iskedjian, David Covert and John Walker

Volume 4, issue 1, 2011

Public and Patient Involvement at the UK National Institute for Health and Clinical Excellence pp. 1-10

Leela Barham

Patient-Reported Outcomes, Patient-Reported Information: From Randomized Controlled Trials to the Social Web and Beyond pp. 11-17

Mike Baldwin, Andrew Spong, Lynda Doward and Ari Gnanasakthy

Understanding and Assessing the Impact of End-Stage Renal Disease on Quality of Life: A Systematic Review of the Content Validity of Self-Administered Instruments Used to Assess Health-Related Quality of Life in End-Stage Renal Disease pp. 19-30

Cheryl Glover, Pauline Banks, Amanda Carson, Colin Martin and Tim Duffy

Development of an Electronic Daily Uterine Fibroid Symptom Diary pp. 31-44

Linda Deal, Valerie Williams and Sheri Fehnel

Patient Preferences for Treatment of Achilles Tendon Pain: Results from a Discrete-Choice Experiment pp. 45-54

Kent Sweeting, Jennifer Whitty, Paul Scuffham and Michael Yelland

Family Burden after Severe Brain Injury: The Italian Experience with Families and Volunteer Associations pp. 55-65

Paola Mosconi, Mariangela Taricco, Mirna Bergamini, Luisella Bosisio Fazzi, Cinzia Colombo, Valentina Patrucco, Marinella Corti, Dario Giobbe, Massimo Guerreschi, Maria Magnarella and Giovanni Sallemi

A Qualitative Study on Feasibility of a Web-Based Women's Health Portal and Information System pp. 67-68

Min Yang, Mark Kosinski and Rosemarie Boulanger

Volume 3, issue 4, 2010

Deborah Marshall, PhD: An Advocate for Patient-Centered Research pp. 207-208

Rebecca Hancock-Howard

Feasibility of Using Modified Adaptive Conjoint Analysis Importance Questions pp. 209-215

Liana Fraenkel

Patient Preferences and Linear Scoring Rules for Patient-Reported Outcomes pp. 217-227

Ateesha Mohamed, A. Hauber, F. Johnson and Cheryl Coon

Multi-Criteria Clinical Decision Support: A Primer on the Use of Multiple-Criteria Decision-Making Methods to Promote Evidence-Based, Patient-Centered Healthcare pp. 229-248

James Dolan

Conjoint Analysis Applications in Health - How are Studies being Designed and Reported?: An Update on Current Practice in the Published Literature between 2005 and 2008 pp. 249-256

Deborah Marshall, John Bridges, Brett Hauber, Ruthanne Cameron, Lauren Donnalley, Ken Fyie and F. Johnson

Adaptive Choice-Based Conjoint Analysis: A New Patient-Centered Approach to the Assessment of Health Service Preferences pp. 257-273

Charles Cunningham, Ken Deal and Yvonne Chen

Using Best-Worst Scaling Choice Experiments to Measure Public Perceptions and Preferences for Healthcare Reform in Australia pp. 275-283

Jordan Louviere and Terry Flynn

Analysis of Patients' Preferences: Direct Assessment and Discrete-Choice Experiment in Therapy of Adults with Attention-Deficit Hyperactivity Disorder pp. 285-294

Axel Muhlbacher and Matthias Nubling

Volume 3, issue 3, 2010

Patient-Reported Outcomes in Rheumatoid Arthritis: Assessing the Equivalence of Electronic and Paper Data Collection pp. 133-143

Brian Tiplady, Kirsteen Goodman, Geraldine Cummings, Dawn Lyle, Robert Carrington, Clare Battersby and Stuart Ralston

Towards Patient-Centered Care for Depression: Conjoint Methods to Tailor Treatment Based on Preferences pp. 145-157

Marsha Wittink, Mark Cary, Thomas TenHave, Jonathan Baron and Joseph Gallo

Patient Views on Determinants of Compliance with Tuberculosis Treatment in the Eastern Cape, South Africa: An Application of Q-Methodology pp. 159-172

Jane Cramm, Job van Exel, Valerie Møller and Harry Finkenflugel

Technology, Reform, and Personal Medical Care pp. 173-177

Norman Makous

Electronic Patient Diaries and Questionnaires - ePRO Now Delivering on the Promise? pp. 179-183

Brian Tiplady

Quality of Life in Restless Legs Syndrome: A Systematic Review of Clinical Trials and a Critical Review of Instruments pp. 185-203

Jane Speight and Ana Howarth

Volume 3, issue 2, 2010

'New' Evidence for Clinical Practice Guidelines: Should we Search for 'Preference Evidence'? pp. 71-77

Murray Krahn

Measuring Preferences for Colorectal Cancer Screening: What are the Implications for Moving Forward? pp. 79-89

Deborah Marshall, S. Elizabeth McGregor and Gillian Currie

Qualitative Development of the Rhinitis Control Assessment Test (RCAT), an Instrument for Evaluating Rhinitis Symptom Control pp. 91-99

Robert Nathan, Anand Dalal, Richard Stanford, Eli Meltzer, Michael Schatz, Jennifer Derebery, Matthew Mintz, Michelle Thompson and Dana DiBenedetti

Contemporary Adult Diabetes Mellitus Management Perceptions pp. 101-111

William Corser, Catherine Lein, Margaret Holmes-Rovner and Ved Gossain

Assessing Drug Treatment Preferences of Patients with Crohn's Disease: A Conjoint Analysis pp. 113-123

Gary Lichtenstein, Heidi Waters, Jenna Kelly, Susan McDonald, Elaine Zanutto, David Hendricks and Mirza Rahman

Explorative Evaluation of the Impact of Premenstrual Disorder on Daily Functioning and Quality of Life pp. 125-132

Lothar Heinemann, Thai Do Minh, Anna Filonenko and Kerstin Uhl-Hochgraber

Volume 3, issue 1, 2010

Assessing Preferences Regarding Healthcare Interventions that Involve Non-Health Outcomes: An Overview of Clinical Studies pp. 1-10

Brent Opmeer, Corianne de Borgie, Ben Mol and Patrick Bossuyt

Is it Possible to Measure What Truly Matters? The Paradox of Clinical Audit in Developing Continence Service Standards for Older People pp. 11-23

Patrick Brown, Jenny Billings, Adrian Wagg and Jonathan Potter

Pharmacological Rhythm and Rate Control Treatment for Atrial Fibrillation: Patient and Physician Satisfaction pp. 33-43

Nils Edvardsson, Anders Westlund, Margareta Thimell, Karin Rise, Alexander Todoran, Tanja Åberg Kurén, John Kindblom and Olle Almgren

Development and Testing of the Insulin Treatment Experience Questionnaire (ITEQ) pp. 45-58

Jorn Moock, Franz Hessel, Diana Ziegeler, Thomas Kubiak and Thomas Kohlmann

Effects of HIV Medication Complexity and Depression on Adherence to HIV Medication pp. 59-69

Virender Kumar and William Encinosa