THE ASSESSMENT OF COST-OF-ILNESS AND QUALITY OF LIFE ON CHILDREN WITH PHENYLKETONURIA – PRELIMINARY RESULTS

Lăcrămioara Aurelia Brîndușe, Dana Galieta Mincă, Michaela Iuliana Nanu and Florentina Moldovanu

Studii si Cercetari de Calcul Economic si Cibernetica Economica Description: This is the official journal of the Journal Studii si Cercetari de Calcul Economic si Cibernetica Economica, 2015, vol. 1-2, 166-175

Abstract: Phenylketonuria is a hereditary disease with important consequences on the psychosomatic development in default of being able to detect the disease at an early stage and to set up a proper diet before the age of three. In Romania, the number of children with phenylketonuria, who are under treatment within The National Program for Rare Diseases, was 108 in 2013. The purpose of this study is to evaluate the cost-of-illness in children with phenylketonuria. The objectives are: to quantify the direct costs of the disease (medical and non-medical), to evaluate the indirect costs generated by the decrease in productivity and to correlate the quality of life of patients suffering from phenylketonuria with the costs determined by the disease. The research is based on a descriptive study, done in a transversal manner on a population of 18 children diagnosed with phenylketonuria at The Institute for Mother and Child Protection, in Bucharest.

Keywords: phenylketonuria; cost-of-illness; economic assessment; quality of life; medical services (search for similar items in EconPapers)
Date: 2015
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