Completeness of Reporting Cases of Acquired Immune Deficiency Syndrome by Clinicians

B. G. Evans and A. McCormick

Journal of the Royal Statistical Society Series A, 1994, vol. 157, issue 1, 105-114

Abstract: This paper examines various methods of estimating the proportion of cases of acquired immune deficiency syndrome (AIDS) which are reported to the UK surveillance programme. The data sources used include laboratory reports of human immunodeficiency virus (HIV) where symptoms suggestive of AIDS are given, clinical trials data, hospice data, reference reports of cryptococcal organisms, lists from clinics and districts, and death entries where AIDS, HIV, Pneumocystis pneumonia or Kaposi's sarcoma are mentioned. Reports on the AIDS database are matched for comparison with data from other sources to obtain an estimate of completeness of reporting. Transcription errors, aliases and lack of complete identifiers on data from one or both of the sources complicate the matching process and will give a falsely low rate of reporting. If the data source used for matching is not independent of the AIDS reporting system then high estimates may be obtained. All the data sources give values which are broadly in the same range and a figure for a completeness rate of 87% is the value finally used for the predictions report.

Date: 1994
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