 Tracing studies and analysis of the effect of loss to follow‐up on mortality estimation from patient registry dataVernon T. Farewell, Jerald F. Lawless, Dafna D. Gladman and Murray B. Urowitz Journal of the Royal Statistical Society Series C, 2003, vol. 52, issue 4, 445-456 Abstract: Summary. Before patient registries are used for studies of the long‐term mortality that is associated with chronic medical conditions, the potential bias resulting from patients who become lost to follow‐up must be investigated. A study design, used for a systemic lupus erythematosus patient registry, is described. The design involves tracing patients who are defined as ‘lost to follow‐up’ according to specific criteria. This provides supplementary information on the mortality experience of patients who are lost to (regular) follow‐up. Some methods of analysis are described, based on comparing the mortality experience of patients when under regular follow‐up with the experience of patients after they are deemed to be lost to follow‐up. The effect of loss to follow‐up, death reporting and visits to the clinic on estimation procedures is illustrated and recommendations are made for patient registries which are to be used in mortality studies. Date: 2003 Downloads: (external link) Related works: Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text Persistent link: https://EconPapers.repec.org/RePEc:bla:jorssc:v:52:y:2003:i:4:p:445-456 Ordering information: This journal article can be ordered from Access Statistics for this article Journal of the Royal Statistical Society Series C is currently edited by R. Chandler and P. W. F. Smith More articles in Journal of the Royal Statistical Society Series C from Royal Statistical Society Contact information at EDIRC. |
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