Formation de la contestation et action collective. Le cas des maladies rares

Isabelle Chalamon

Revue française de gestion, 2009, vol. n° 193, issue 3, 89-106

Abstract: This article deals with the development of contention through the case of the mobilization in favour of rare diseases in France. It stresses the main factors explaining the emergence of this patients organized contention in the face of therapeutic deadlock and lack of health care. This research also underlines a recent evolution of the health care sector: the increasingly central role played by a new political actor - the patient - through the associations in charge of making their voices heard.

Date: 2009
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