Qualitative accounts of young-people, parents and staff involved with a purpose-designed, pilot short-break service for 18–24 year olds with life-limiting conditions

Lynne Young, Angela Egdell and Veronica Swallow

Children and Youth Services Review, 2018, vol. 86, issue C, 142-150

Abstract: Transition to adult health and social-care services is a time of great uncertainty for young adults with life-limiting conditions; due to improved management, many who would have previously died before they were 18 years old are now surviving into early adulthood. Nevertheless, few services exist to meet their specific needs for specialist short breaks away from home. The purpose of this research was to determine the views and perspectives of young adults' parents/carers and staff engaged with a purpose-designed, pilot short-break service for 18–24 year olds with life-limiting conditions. Data were gathered through qualitative individual or focus group interviews involving two young adults, four mothers and fifteen health or social-care staff associated with the service. Data were analysed using Framework Analysis.

Keywords: Life-limiting condition; Life-shortening condition; Young people; Young adult; Transition; Short-breaks (search for similar items in EconPapers)
Date: 2018
References: View complete reference list from CitEc
Citations:

Downloads: (external link)
http://www.sciencedirect.com/science/article/pii/S0190740917307314
Full text for ScienceDirect subscribers only

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:eee:cysrev:v:86:y:2018:i:c:p:142-150

DOI: 10.1016/j.childyouth.2018.01.016

Access Statistics for this article

Children and Youth Services Review is currently edited by Duncan Lindsey

More articles in Children and Youth Services Review from Elsevier
Bibliographic data for series maintained by Catherine Liu ().