Self-help organisations as patient representatives in health care and policy decision-making

Daniela Rojatz and Rudolf Forster

Health Policy, 2017, vol. 121, issue 10, 1047-1052

Abstract: A crucial question about participation is who is legitimised, willing and capable of representing particular collectives. Social insurance health care systems tend to focus on representation by patient organisations. Self-help organisations (SHOs), as one type of ‘health consumer and patient organisation’, often take over this role. Research findings indicate that participation by SHOs is accompanied by high expectations, but also by concerns about the risks of instrumental abuse, overload and professionalisation. However, there is a dearth of in-depth knowledge about both potential and risks of participating for the SHO.

Keywords: Patient participation; Self-help organizations; Health policy decision-making (search for similar items in EconPapers)
Date: 2017
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Citations: View citations in EconPapers (2)

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Persistent link: https://EconPapers.repec.org/RePEc:eee:hepoli:v:121:y:2017:i:10:p:1047-1052

DOI: 10.1016/j.healthpol.2017.08.012

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