The challenge of democratic patient representation: Understanding the representation work of patient organizations through methodological triangulation

Julia Fischer and Hester M. Van de Bovenkamp

Health Policy, 2019, vol. 123, issue 1, 109-114

Abstract: Increasingly, patient organizations (POs) play a role in health policy making. Their involvement is expected to contribute to the democratization of decision making. It is therefore important to study this contribution. Scholars hardly draw on representation theory for this. Yet exploring POs as a case of representation is crucial to better understand how POs add to democratizing health policy.

Keywords: Accountability; Authorization; Democratic representation; Democratization of health policy; Patient organizations; Patient representation (search for similar items in EconPapers)
Date: 2019
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Persistent link: https://EconPapers.repec.org/RePEc:eee:hepoli:v:123:y:2019:i:1:p:109-114

DOI: 10.1016/j.healthpol.2018.11.011

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