Non-disclosure of chronic kidney disease in primary care and the limits of instrumental rationality in chronic illness self-management

Gavin Daker-White, Anne Rogers, Anne Kennedy, Thomas Blakeman, Christian Blickem and Carolyn Chew-Graham

Social Science & Medicine, 2015, vol. 131, issue C, 31-39

Abstract: Early detection of long term conditions is predicated on assumptions that lifestyle changes and medications can be used to reduce or manage the risk of condition progression. However, ambiguity remains about the nature and place of diagnostic disclosure to people in newly recognised or asymptomatic ‘pre’ conditions such as early stage chronic kidney disease (CKD). The disclosure of a diagnosis is relevant to instigating strategies which rely on actively engaging patients as self-managers of their own care. Whilst primary care routinely records a diagnosis of early stage CKD, little is known about how patients learn about the fact that they have CKD or how they respond to this. This study aimed to explore patients' experiences of disclosure of CKD in primary care settings.

Keywords: UK; Qualitative study; Diagnosis; Chronic kidney disease; Doctor–patient communication; Self-management (search for similar items in EconPapers)
Date: 2015
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DOI: 10.1016/j.socscimed.2015.02.035

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