Heuristic decision-making about research participation in children with cystic fibrosis

Emily Christofides, Jennifer A. Dobson, Melinda Solomon, Valerie Waters and O’Doherty, Kieran C.

Social Science & Medicine, 2016, vol. 162, issue C, 32-40

Abstract: Traditional perspectives on informed consent assume that when faced with decisions about whether to participate in research, individuals behave according to principles of classical rationality, taking into account all available information to weigh risks and benefits to come to a decision that is optimal for them. However, theoretical and empirical research in psychology suggests that people may not make decisions in this way. Less is known about decision-making processes as they pertain to participating in biomedical research, particularly when the participants are children.

Keywords: Informed consent; Research ethics; Decision-making; Heuristics; Cystic fibrosis; Children (search for similar items in EconPapers)
Date: 2016
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Persistent link: https://EconPapers.repec.org/RePEc:eee:socmed:v:162:y:2016:i:c:p:32-40

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DOI: 10.1016/j.socscimed.2016.06.017

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