Understanding public reactions to commercialization of biobanks and use of biobank resources

Dianne Nicol, Christine Critchley, Rebekah McWhirter and Tess Whitton

Social Science & Medicine, 2016, vol. 162, issue C, 79-87

Abstract: Biobanks will be essential to facilitate the translation of genomic research into real improvements to healthcare. Biobanking is a long-term commitment, requiring public support as well as appropriate regulatory, social and ethical guidelines to realize this promise. There is a growing body of research that explores the necessary conditions to ensure public trust in biomedical research, particularly in the context of biobanking. Trust is, however, a complex relationship. More analysis of public perceptions, attitudes and reactions is required to understand the primary triggers that influence gain and loss of trust. Further, the outcomes of these analyses require detailed consideration to determine how to promote trustworthy institutions and practices.

Keywords: Public reaction; Commercialization; Biobanking; Biomedical research; Donor perspectives; Survey; Community consultation; Deliberative democracy event (search for similar items in EconPapers)
Date: 2016
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Persistent link: https://EconPapers.repec.org/RePEc:eee:socmed:v:162:y:2016:i:c:p:79-87

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DOI: 10.1016/j.socscimed.2016.06.028

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