Preference heterogeneity with respect to whole genome sequencing. A discrete choice experiment among parents of children with rare genetic diseases

Christine Peyron, Aurore Pélissier and Sophie Béjean

Social Science & Medicine, 2018, vol. 214, issue C, 125-132

Abstract: The information to which whole genome sequencing (WGS) provides access raises questions about its disclosure to patients. The literature focused on the nature of findings, shows patients share the same expectations while evoking possible heterogeneity. Our objective is to test this hypothesis of preference heterogeneity with respect to the disclosure of results from WGS by means of a discrete choice experiment (DCE).

Keywords: France; Stated preferences; Discrete choice experiment; Latent class analysis; Genetic testing; Whole genome sequencing; Rare diseases (search for similar items in EconPapers)
Date: 2018
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Citations: View citations in EconPapers (1)

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DOI: 10.1016/j.socscimed.2018.08.015

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