Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa

Marlyn C. Faure, Olivia P. Matshabane, Patricia Marshall, Paul S. Appelbaum, Dan J. Stein, Mark E. Engel and Jantina de Vries

Social Science & Medicine, 2019, vol. 243, issue C

Abstract: A common concern in African genomic research is that such work may cause, or increase, stigma associated with particular diseases or population groups. While there is some evidence suggesting that genetic attribution of disease might impact stigma, there exists no evidence for the situation in African populations. With increasing genomic research in African populations, questions about the effect of genetic attribution on disease-related stigma are salient for stakeholders involved in implementation and regulation. To understand better the relationship between stigma and genetic attribution, we interviewed people with Rheumatic Heart Disease (RHD) in the Western Cape of South Africa.

Keywords: South Africa; Africa; Genetic attribution; Genomics; Stigma; Rheumatic heart disease; Inequality (search for similar items in EconPapers)
Date: 2019
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DOI: 10.1016/j.socscimed.2019.112619

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