Hemophilia tweets in Turkey: A rare disease and scarce policies

Serra Sezgin, Canan Sümeyra Gün, Mehmet Can Uğur and Selmin Şenol

Social Science & Medicine, 2025, vol. 373, issue C

Abstract: •Rare diseases reveal broader systemic inequalities in healthcare and society.•Accessible medications often remain out of reach for marginalized patients.•Patient struggles gain visibility only through urgent public appeals.•Twitter (X) can foster dialogue or remain a space for isolated monologues.•Public institutions must engage critically to improve health communication.

Date: 2025
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DOI: 10.1016/j.socscimed.2025.117937

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