Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives

Jacqueline M. van Tuyll van Serooskerken, Agnes M. Willemen, Anne de la Croix, Petri J. C. M. Embregts and Carlo Schuengel
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Jacqueline M. van Tuyll van Serooskerken: Department of Clinical Child and Family Studies, Faculty of Behavioural and Movement Sciences, Vrije Universiteit Amsterdam, 1081 BT Amsterdam, The Netherlands
Agnes M. Willemen: Department of Clinical Child and Family Studies, Faculty of Behavioural and Movement Sciences, Vrije Universiteit Amsterdam, 1081 BT Amsterdam, The Netherlands
Anne de la Croix: Department of Research in Education, VUmc School of Medical Sciences, Amsterdam Universitair Medische Centra, 1081 HV Amsterdam, The Netherlands
Petri J. C. M. Embregts: Department of Tranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University, 5037 DB Tilburg, The Netherlands
Carlo Schuengel: Department of Clinical Child and Family Studies, Faculty of Behavioural and Movement Sciences, Vrije Universiteit Amsterdam, 1081 BT Amsterdam, The Netherlands

Disabilities, 2022, vol. 2, issue 2, 1-18

Abstract: Background : The fulfilment of basic psychological needs (BPNs) is seen as an integral part of human self-determination, subjective wellbeing, and overall quality of life. However, the meaning of these psychological constructs for individuals with the most extensive support needs remains elusive. Methods : Primary relatives of nine people diagnosed with severe or profound intellectual and multiple disabilities were interviewed about their perceptions of autonomy, competence, and relatedness regarding their family member with complex care needs, and about the ways in which they tried to support their family member in fulfilling specific BPNs. The interview analysis followed a grounded theory with the sensitizing concepts approach. Results : The relatives assigned important meaning to the BPNs, providing insights into their subtle nature, their implicit drivers, and how they were experienced. The relatives also identified serious challenges in detecting, clarifying, and creating opportunities for BPNs. Conclusions : The themes in the relatives’ perspectives can be summarized into a conceptual framework that may contribute to better mutual understanding between people with complex care needs, their relatives, and healthcare providers.

Keywords: people with extensive and complex support needs; primary relatives; basic psychological needs; self-determination; grounded theory; sensitizing concepts (search for similar items in EconPapers)
JEL-codes: I (search for similar items in EconPapers)
Date: 2022
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