Participatory Research Partnership in Rehabilitation—Co-Development of a Model for Collaboration Process

Salla Sipari (), Nea Vänskä, Krista Lehtonen, Sari Helenius, Toini Harra, Anu Kinnunen, Sara Väisänen and Ira Jeglinsky
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Salla Sipari: Department of Wellbeing, Metropolia University of Applied Sciences, 00920 Helsinki, Finland
Nea Vänskä: Department of Rehabilitation and Examination, Metropolia University of Applied Sciences, 00920 Helsinki, Finland
Krista Lehtonen: Department of Rehabilitation and Examination, Metropolia University of Applied Sciences, 00920 Helsinki, Finland
Sari Helenius: Department of Wellbeing, Metropolia University of Applied Sciences, 00920 Helsinki, Finland
Toini Harra: Department of Wellbeing, Metropolia University of Applied Sciences, 00920 Helsinki, Finland
Anu Kinnunen: Department of Future Health Care Services, Lapland University of Applied Sciences, 94600 Kemi, Finland
Sara Väisänen: Department of Rehabilitation and Examination, Metropolia University of Applied Sciences, 00920 Helsinki, Finland
Ira Jeglinsky: Graduate School and Research, Arcada University of Applied Sciences, 00550 Helsinki, Finland

Disabilities, 2023, vol. 3, issue 3, 1-16

Abstract: Purpose : Collaboration that engages diverse stakeholders to actively participate in the rehabilitation research process is becoming a crucially important approach when the purpose is to promote well-being in everyday life. The aim of this study was to co-develop a partnership-based participation model for research with stakeholders such as researchers, rehabilitees, close ones, rehabilitation professionals and experts by experience. Methods : We applied an action research approach. The Participatory Research Partnership (PaRe) model was co-developed in a multi-phase process including a literature review, workshops and focus group discussions (64 participants). The model was tested, evaluated and further developed in a developmental training process with 50 experts in rehabilitation. Results : The PaRe model consists of five phases: (1) starting the research partnership; (2) building a research team; (3) reciprocal co-planning of research; (4) co-production of new research data; and (5) utilization of research data in everyday life. The model comprises examples and templates including developmental and ethical evaluation. Conclusions : The PaRe model enhances co-agency, interaction and co-learning in rehabilitation research and practices. Active participation of users and providers of rehabilitation services in scientific research promotes everyday accessibility and relevance of research-based knowledge. The model ensures that the research process and results are meaningful and empowering for the participants.

Keywords: participatory research partnership; rehabilitation; collaboration (search for similar items in EconPapers)
JEL-codes: I (search for similar items in EconPapers)
Date: 2023
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Persistent link: https://EconPapers.repec.org/RePEc:gam:jdisab:v:3:y:2023:i:3:p:27-425:d:1235375

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