Metalinguistic Awareness as Self-Management in People with Apraxia of Speech and Aphasia: Lived Experience from a Longitudinal Case Series

Katharyn Mumby ()
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Katharyn Mumby: New Pathways, Speech & Language Therapy and Consultancy, Cullompton, Devon EX15 3RW, UK

Disabilities, 2023, vol. 3, issue 4, 1-29

Abstract: People with acquired apraxia of speech (AOS) and aphasia commonly experience long-term communication disability without support for their ongoing recovery or self-management. Little is known about their lived experience of metalinguistic abilities and capacity to harness them for self-management of speech production. The author, a speech and language therapist (SLT), revisited her previous qualitative study after her own more recent lived experience of recovering from mild aphasia. Participant perspectives were explored from a longitudinal case series (eleven people with confirmed AOS and aphasia discharged from SLT), with full ethical approval. The anonymized data comprised detailed transcripts from videoed semi-structured interviews, participant assessments, field notes and reflections, member checking, and reflexivity. The original systematic thematic analysis of these data in NVivo software was re-interrogated by the author, deriving three overarching themes: Metalinguistic awareness of spoken communication breakdown, Self-management, and Therapeutic assessment. The participants conveyed the nature, occurrence, context, mechanism, and purpose underlying errors in spoken communication (themes of What, When, Where, How and Why). They generated compensatory strategies, elucidated via subthemes with quotations, verified contemporaneously by an original participant volunteer. The findings support the value of metalinguistic co-construction during in-depth assessments of communication disability, offering fresh avenues for long-term self-management in aphasia and AOS.

Keywords: aphasia; apraxia of speech; communication disability; metalanguage; lived experience; compensatory strategies; self-management; long-term conditions; speech and language therapy; underlying mechanisms (search for similar items in EconPapers)
JEL-codes: I (search for similar items in EconPapers)
Date: 2023
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