A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership

Edith M. Williams, Julien Terrell, Judith Anderson and Laurene Tumiel-Berhalter
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Edith M. Williams: Department of Public Health Sciences, Medical University of South Carolina (MUSC), 135 Cannon Street, Charleston, SC 29425, USA
Julien Terrell: The Brotherhood/Sister Sol (Bro/Sis), 512 West 143rd Street, New York, NY 10031, USA
Judith Anderson: Environmental Justice Action Group (EJAG) of Western NY, Buffalo, NY 14203, USA
Laurene Tumiel-Berhalter: Primary Care Research Institute, University at Buffalo, UB Gateway Building, 77 Goodell St, Suite 220, Buffalo, NY 14203, USA

IJERPH, 2016, vol. 13, issue 5, 1-9

Abstract: The Buffalo Lupus Project was a community-university partnership that investigated associations between exposure to a local waste site and high rates of lupus and other autoimmune diseases. The partnership’s major accomplishment was successful advocacy for containment and clean-up of the site. As a result of community education, the remediation plan suggested by the community was adopted. Additionally, when a local childhood lead poisoning testing program was canceled, community members signed a letter to legislators urging them to replace the funding, which was restored within one week. This demonstrated how coordinated community-based capacity-building efforts can influence health policy.

Keywords: Lupus; Superfund; community-based participatory research; health policy (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2016
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