Geographical Accessibility of the Sarcoma Referral Networks in France. Intermediate Results from the IGéAS Research Program

Yohan Fayet, Jean-Michel Coindre, Cécile Dalban, François Gouin, Gonzague De Pinieux, Fadila Farsi, Françoise Ducimetière, Claire Chemin-Airiau, Myriam Jean-Denis, Sylvie Chabaud, Jean-Yves Blay and Isabelle Ray-Coquard
Additional contact information
Yohan Fayet: Equipe Evaluation Médicale et Sarcomes, Centre Léon Bérard, Université Claude Bernard Lyon 1, HESPER EA 7425, 69008 Lyon, France
Jean-Michel Coindre: Institut Bergonié, RRePS Network, 33000 Bordeaux, France
Cécile Dalban: Direction de la Recherche Clinique et de l’Innovation, Centre Léon Bérard, 69008 Lyon, France
François Gouin: Centre Hospitalier Universitaire Nantes, ResOs Network, 44000 Nantes, France
Gonzague De Pinieux: Centre Hospitalier Universitaire Tours, ResOs Network, 37000 Tours, France
Fadila Farsi: Réseau Régional de Cancérologie Auvergne–Rhône–Alpes, 69008 Lyon, France
Françoise Ducimetière: Equipe Evaluation Médicale et Sarcomes, Centre Léon Bérard, Netsarc RRePS ResOs Networks, 69008 Lyon, France
Claire Chemin-Airiau: Equipe Evaluation Médicale et Sarcomes, Centre Léon Bérard, Netsarc RRePS ResOs Networks, 69008 Lyon, France
Myriam Jean-Denis: Equipe Evaluation Médicale et Sarcomes, Centre Léon Bérard, Netsarc RRePS ResOs Networks, 69008 Lyon, France
Sylvie Chabaud: Direction de la Recherche Clinique et de l’Innovation, Centre Léon Bérard, 69008 Lyon, France
Jean-Yves Blay: Centre Léon Bérard, Netsarc Network, Université Claude Bernard Lyon 1, 69008 Lyon, France
Isabelle Ray-Coquard: Centre Léon Bérard, Netsarc Network, Université Claude Bernard Lyon 1, HESPER EA 7425, 69008 Lyon; France

IJERPH, 2018, vol. 15, issue 10, 1-12

Abstract: Rare cancer patients face lower survival and experience delays in diagnosis and therapeutic mismanagement. Considering the specificities of rare cancers, referral networks have been implemented in France to improve the management and survival of patients. The IGéAS research program aims to assess the networks’ ability to reduce inequalities. Data analysis of the IGéAS cohort ( n = 20,590, sarcoma diagnosed between 2011 and 2014) by gathering medical data and geographical index will identify risk factors associated with the belated access to expertise or with no access to expertise. Intermediate results show that referral networks give sarcoma patients access to sarcoma expertise despite the remoteness of some of them. Regional expert centers mostly receive requests from within their area while national referral centers receive requests from the whole country. Delays in the access to expertise may be reduced by making outside practitioners more sensitive to the issues of rare cancers. The perception and involvement of outside practitioners in this device will be assessed using a qualitative survey. All the results are discussed and will contribute to design guidelines to improve early access to expertise and reduce inequalities. Results of the IGéAS research program may contribute to the assessment of referral sarcoma networks and provide some useful lessons to improve cancer care management.

Keywords: sarcoma; referral networks; cancer inequalities; cancer care quality; multidisciplinary tumor board; histological review; health care access (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2018
References: View complete reference list from CitEc
Citations: View citations in EconPapers (1)

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