Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Verónica Schiariti, Egmar Longo, Alexander Shoshmin, Ludmila Kozhushko, Yanina Besstrashnova, Maria Król, Taynah Neri Correia Campos, Haryelle Náryma Confessor Ferreira, Cláudia Verissimo, Daniel Shaba, Matilda Mwale and Sandra Amado
Additional contact information
Verónica Schiariti: Division of Medical Sciences, University of Victoria, Victoria, BC V8W 2Y2, Canada
Egmar Longo: Postgraduate Program in Collective Health, Faculty of Health Sciences of Trairi (UFRN-FACISA), Federal University of Rio Grande do Norte, Santa Cruz 59200-000, Brazil
Alexander Shoshmin: Federal Scientific Center of Rehabilitation of the Disabled named after G.A. Albrecht, Saint Petersburg 195067, Russia
Ludmila Kozhushko: Federal Scientific Center of Rehabilitation of the Disabled named after G.A. Albrecht, Saint Petersburg 195067, Russia
Yanina Besstrashnova: Federal Scientific Center of Rehabilitation of the Disabled named after G.A. Albrecht, Saint Petersburg 195067, Russia
Maria Król: The Step by Step Association for Help of Disabled Children, Zamość 22-400, Poland
Taynah Neri Correia Campos: Postgraduate Program in Collective Health, Faculty of Health Sciences of Trairi (UFRN-FACISA), Federal University of Rio Grande do Norte, Santa Cruz 59200-000, Brazil
Haryelle Náryma Confessor Ferreira: Postgraduate Program in Collective Health, Faculty of Health Sciences of Trairi (UFRN-FACISA), Federal University of Rio Grande do Norte, Santa Cruz 59200-000, Brazil
Cláudia Verissimo: Health School Science, Polytechnic Institute of Leiria, Leiria 2411-901, Portugal
Daniel Shaba: RIPPLE Africa, Limbe 431136, Malawi, Africa
Matilda Mwale: RIPPLE Africa, Limbe 431136, Malawi, Africa
Sandra Amado: Health School Science, Polytechnic Institute of Leiria, Leiria 2411-901, Portugal

IJERPH, 2018, vol. 15, issue 9, 1-19

Abstract: Background: The International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with cerebral palsy (CP) offer service providers and stakeholders a specific framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context. Objective: Describe global initiatives applying the ICF Core Sets for children and youth with CP, with a focus on contributions to clinical practice and challenges in their implementation. Methods: This is a descriptive cross-sectional study. Ongoing initiatives applying the ICF Core Sets for CP in Russia, Poland, Malawi, and Brazil are included. Results: The main contributions of applying the ICF Core Sets for children and youth with CP include: (1) an objective description of abilities and limitations in everyday activities; (2) a consistent identification of facilitators and barriers influencing functioning; (3) a practical communication tool promoting client-centered care and multidisciplinary teamwork; and, (4) a useful guideline for measurement selection. The main challenges of adopting the ICF Core Sets are related to lack of ICF knowledge requiring intense training and translating results from standardized measures into the ICF qualifiers in a consistent way. Conclusions: Global initiatives include research and clinical applications at the program, service and system levels. The ICF Core Sets for CP are useful tools to guide service provision and build profiles of functioning and disability. Global interprofessional collaboration, capacity training, and informatics (e-records) will maximize their applications and accelerate adoption.

Keywords: ICF Core Sets; child; cerebral palsy; disability; functioning; abilities; global health; service provision (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2018
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (3)

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