Pilot Testing of a Patient Decision Aid for Adolescents with Severe Obesity in US Pediatric Weight Management Programs within the COMPASS Network

Jaime Moore, Matthew Haemer, Nazrat Mirza, Ying Z Weatherall, Joan Han, Caren Mangarelli, Mary Jane Hawkins, Stavra Xanthakos and Robert Siegel
Additional contact information
Jaime Moore: Department of Pediatrics, Section of Nutrition, University of Colorado School of Medicine, Aurora, CO 80045, USA
Matthew Haemer: Department of Pediatrics, Section of Nutrition, University of Colorado School of Medicine, Aurora, CO 80045, USA
Nazrat Mirza: Children’s National Medical Center, Washington, DC 20010, USA
Ying Z Weatherall: Department of Surgery, University of Tennessee Health Science Center, Memphis, TN 38103, USA
Joan Han: Department of Pediatrics, University of Tennessee Health Science Center, Memphis, TN 38103, USA
Caren Mangarelli: Duke Children’s Healthy Lifestyles Program, Durham, NC 27705, USA
Mary Jane Hawkins: Children’s Hospital & Medical Center, Omaha, NE 68114, USA
Stavra Xanthakos: Division of Pediatric Gastroenterology, Hepatology and Nutrition, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45267, USA
Robert Siegel: Heart Institute, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45267, USA

IJERPH, 2019, vol. 16, issue 10, 1-12

Abstract: Shared decision-making (SDM) is a best practice for delivering high-quality, patient-centered care when there are multiple options from which to choose. A patient decision aid (PDA) to promote SDM for the treatment of adolescent severe obesity was piloted among 12–17-year-olds ( n = 31) from six pediatric weight management programs within the Childhood Obesity Multi Program Analysis and Study System (COMPASS). Medical providers used a brochure that described indications, risks, and benefits of intensive lifestyle management alone versus bariatric surgery plus lifestyle. Immediately after, patients/families completed a survey. Patient/family perceptions of provider effort to promote understanding of health issues, to listen to what mattered most to them, and to include what mattered most to them in choosing next steps averaged 8.6, 8.8, and 8.7, respectively (0 = no effort, 9 = every effort). Nearly all (96%) reported knowing the risks/benefits of each treatment option and feeling clear about which risks/benefits mattered most to them. Most (93%) reported having enough support/advice to make a choice, and 89% felt sure about what the best choice was. Providers largely found the PDA to be feasible and acceptable. This pilot will guide a more rigorous study to determine the PDA’s effectiveness to support decision-making for adolescent severe obesity treatment.

Keywords: shared decision-making; Patient decision aid; adolescent; severe obesity; treatment; lifestyle; bariatric surgery (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2019
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (2)

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