Finding Users’ Voice on Social Media: An Investigation of Online Support Groups for Autism-Affected Users on Facebook

Yuehua Zhao, Jin Zhang and Min Wu
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Yuehua Zhao: School of Information Management, Jiangsu Key Laboratory of Data Engineering and Knowledge Service, Nanjing University, Nanjing 210023, China
Jin Zhang: School of Information Studies, University of Wisconsin Milwaukee, Milwaukee, WI 53211, USA
Min Wu: College of Health Sciences, University of Wisconsin Milwaukee, Milwaukee, WI 53211, USA

IJERPH, 2019, vol. 16, issue 23, 1-13

Abstract: The trend towards the use of the Internet for health information purposes is rising. Utilization of various forms of social media has been a key interest in consumer health informatics (CHI). To reveal the information needs of autism-affected users, this study centers on the research of users’ interactions and information sharing within autism communities on social media. It aims to understand how autism-affected users utilize support groups on Facebook by applying natural language process (NLP) techniques to unstructured health data in social media. An interactive visualization method (pyLDAvis) was employed to evaluate produced models and visualize the inter-topic distance maps. The revealed topics (e.g., parenting, education, behavior traits) identify issues that individuals with autism were concerned about on a daily basis and how they addressed such concerns in the form of group communication. In addition to general social support, disease-specific information, collective coping strategies, and emotional support were provided as well by group members based on similar personal experiences. This study concluded that Latent Dirichlet Allocation (LDA) is feasible and appropriated to derive topics (focus) from messages posted to the autism support groups on Facebook. The revealed topics help healthcare professionals (content providers) understand autism from users’ perspectives and provide better patient communications.

Keywords: consumer health informatics; natural language processing (NLP); online support groups; autism (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2019
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (4)

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