Cultural Adaptation and Validation of the Inflammatory Bowel Disease Disability Index in a Spanish Population and Its Association with Sociodemographic and Clinical Factors

Rafael López-Cortés, Raquel Herrero-Hahn, Rosanna De la Rosa-Eduardo, Rafael Montoya-Juárez, María Paz García-Caro, Blanca Marín-Fernández and César Hueso-Montoro
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Rafael López-Cortés: Ministry of Health, Andalusian Goverment, 18014 Granada, Spain
Raquel Herrero-Hahn: Faculty of Health Sciences, University of Granada, 18016 Granada, Spain
Rosanna De la Rosa-Eduardo: Department of Health Sciences, Public University of Navarra, 31008 Pamplona, Spain
Rafael Montoya-Juárez: Faculty of Health Sciences, University of Granada, 18016 Granada, Spain
María Paz García-Caro: Faculty of Health Sciences, University of Granada, 18016 Granada, Spain
Blanca Marín-Fernández: Department of Health Sciences, Public University of Navarra, 31008 Pamplona, Spain
César Hueso-Montoro: Faculty of Health Sciences, University of Jaén, 23071 Jaén, Spain

IJERPH, 2019, vol. 16, issue 4, 1-14

Abstract: Inflammatory bowel diseases generate disability. We aimed to adapt and validate the Inflammatory Bowel Disease Disability Index in a Spanish population and to analyze the sociodemographic and clinical factors associated with disability in patients with Crohn’s disease and ulcerative colitis. Cultural adaptation and validation of psychometric properties in the index were done, along with an observational, cross-sectional, and analytical approach to determine associations with sociodemographic and clinical factors. Sociodemographic data, quality of life (using the Inflammatory Bowel Disease Questionnaire-32), and indicators of disease activity were collected, among others. A total of 170 subjects participated. The index showed high internal consistency, with a Cronbach’s alpha of 0.869 and concurrent validity with the Inflammatory Bowel Disease Questionnaire-32 ( r = 0.723, p < 0.001). The average score of the index was −3.91. Greater degrees of disability were found in women (mean = −6.77) than in men (mean = −1.25) ( p = 0.018), in patients with Crohn’s disease (mean = −5.94) rather than those with ulcerative colitis (mean = −0.94) ( p = 0.028), and in patients in the moderately active disease phase (mean = −20.94) rather than those in the mildly active disease phase (mean = −2.65) and/or those in remission (mean = −1.40) ( p < 0.001). The Disability Index is a valid tool for the Spanish population and is associated with sex, type of illness, and disease activity. It is a useful index in evaluating and monitoring disability in patients with inflammatory bowel disease.

Keywords: inflammatory bowel disease; disability; quality of life (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2019
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