Knowledge and Myths about Palliative Care among the General Public and Health Care Professionals in Portugal

Maria dos Anjos Dixe, Irene Dixe de Oliveira Santo, Saudade Lopes, Helena Catarino, Susana Duarte, Ana Querido and Carlos Laranjeira
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Maria dos Anjos Dixe: School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
Irene Dixe de Oliveira Santo: Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André—66–68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal
Saudade Lopes: School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
Helena Catarino: School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
Susana Duarte: The Health Sciences Research Unit: Nursing, Nursing School of Coimbra (ESEnfC), 3046-851 Coimbra, Portugal
Ana Querido: School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal
Carlos Laranjeira: School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal

IJERPH, 2020, vol. 17, issue 13, 1-12

Abstract: Background: International research has shown that healthcare professionals (HCPs) and nonhealthcare professionals (NHCPs) are unaware of the goals and purposes of palliative care. This study evaluates the knowledge of palliative care among a sample of Portuguese adults and correlates their level of knowledge with age, gender, profession, and experience of family member’s palliative care. Method: A cross-sectional online survey was carried out on a sample of 152 HCPs and 440 NHCPs who completed an anonymous questionnaire of sociodemographic, family, and professional data, and an instrument of 26 dichotomous (true or false) questions focusing on palliative care goals and purposes. Results: The 592 participants had a mean age of 31.3 ± 11.1 years, and most were female. Statistically significant differences between statements considered as correct by HCPs and NHCPs were found in 24 statements; HCPs had the highest percentage of correct answers. The terms most frequently associated with palliative care mentioned by NHCPs were chronic and progressive disease (n = 76), while HCPs mostly mentioned quality-of-life promotion (n = 29). Women, the elderly, and HCPs had a higher level of knowledge regarding palliative care ( p < 0.001). Conclusions : Results clearly show gaps in knowledge of palliative care, especially among NHCPs. An integrated approach is needed to inform and clarify the philosophy and goals of palliative care in different settings in order to improve knowledge.

Keywords: palliative care; knowledge; end-of-life care; health care professionals; nonhealthcare professionals (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2020
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