Good Practice Data Linkage (GPD): A Translation of the German Version

Stefanie March, Silke Andrich, Johannes Drepper, Dirk Horenkamp-Sonntag, Andrea Icks, Peter Ihle, Joachim Kieschke, Bianca Kollhorst, Birga Maier, Ingo Meyer, Gabriele Müller, Christoph Ohlmeier, Dirk Peschke, Adrian Richter, Marie-Luise Rosenbusch, Nadine Scholten, Mandy Schulz, Christoph Stallmann, Enno Swart, Stefanie Wobbe-Ribinski, Antke Wolter, Jan Zeidler and Falk Hoffmann
Additional contact information
Stefanie March: Institute for Social Medicine and Health Systems Research (ISMHSR), Medical Faculty, Otto von Guericke University Magdeburg, 39120 Magdeburg, Germany
Silke Andrich: Institute for Health Services Research and Health Economics, Centre for Health and Society, Faculty of Medicine, Heinrich-Heine-University Düsseldorf, 40225 Dusseldorf, Germany
Johannes Drepper: TMF—Technology, Methods, and Infrastructure for Networked Medical Research, 10117 Berlin, Germany
Dirk Horenkamp-Sonntag: Techniker Krankenkasse, Healthcare Management, 22305 Hamburg, Germany
Andrea Icks: Institute for Health Services Research and Health Economics, Centre for Health and Society, Faculty of Medicine, Heinrich-Heine-University Düsseldorf, 40225 Dusseldorf, Germany
Peter Ihle: PMV Research Group, University of Cologne, 50931 Cologne, Germany
Joachim Kieschke: Epidemiological Cancer Registry of Lower Saxony, Register Center, 26121 Oldenburg, Germany
Bianca Kollhorst: Leibniz Institute for Prevention Research and Epidemiology—BIPS Department Biometry and Data Management, 28359 Bremen, Germany
Birga Maier: Berlin-Brandenburg Myocardial Infarction Registry e. V., 10317 Berlin, Germany
Ingo Meyer: PMV Research Group, University of Cologne, 50931 Cologne, Germany
Gabriele Müller: Center for Evidence-Based Healthcare (ZEGV), University Hospital and Faculty of Medicine Carl Gustav Carus, Technical University of Dresden, 01307 Dresden, Germany
Christoph Ohlmeier: IGES Institut GmbH, 10117 Berlin, Germany
Dirk Peschke: Institute for Public Health and Nursing Research (IPP), University of Bremen, 28359 Bremen, Germany
Adrian Richter: Institute for Community Medicine, Department SHIP-KEF, Greifswald University Medical Center, 17475 Greifswald, Germany
Marie-Luise Rosenbusch: Central Research Institute for Ambulatory Healthcare in Germany (Zi), Department of Data Science and Healthcare Analyses, 10587 Berlin, Germany
Nadine Scholten: Institute of Medical Sociology, Health Services Research and Rehabilitation Science (IMVR), Faculty of Human Sciences and Faculty of Medicine, University of Cologne, 50933 Cologne, Germany
Mandy Schulz: Central Research Institute for Ambulatory Healthcare in Germany (Zi), Department of Data Science and Healthcare Analyses, 10587 Berlin, Germany
Christoph Stallmann: Institute for Social Medicine and Health Systems Research (ISMHSR), Medical Faculty, Otto von Guericke University Magdeburg, 39120 Magdeburg, Germany
Enno Swart: Institute for Social Medicine and Health Systems Research (ISMHSR), Medical Faculty, Otto von Guericke University Magdeburg, 39120 Magdeburg, Germany
Stefanie Wobbe-Ribinski: DAK Gesundheit, Health Services Research and Innovation, 20097 Hamburg, Germany
Antke Wolter: DAK Gesundheit, Health Services Research and Innovation, 20097 Hamburg, Germany
Jan Zeidler: Center for Health Economics Research Hanover (CHERH), Leibniz University Hanover, 30159 Hanover, Germany
Falk Hoffmann: Faculty of Medicine and Health Sciences, Department of Healthcare Research, Carl von Ossietzky University Oldenburg, 26129 Oldenburg, Germany

IJERPH, 2020, vol. 17, issue 21, 1-20

Abstract: The data linkage of different data sources for research purposes is being increasingly used in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to provide methodological guidelines and recommendations for research projects that have been consented to across different German research societies. Another aim is to endow readers with a checklist for the critical appraisal of research proposals and articles. This Good Practice Data Linkage (GPD) was already published in German in 2019, but the aspects mentioned can easily be transferred to an international context, especially for other European Union (EU) member states. Therefore, it is now also published in English. Since 2016, an expert panel of members of different German scientific societies have worked together and developed seven guidelines with a total of 27 practical recommendations. These recommendations include (1) the research objectives, research questions, data sources, and resources; (2) the data infrastructure and data flow; (3) data protection; (4) ethics; (5) the key variables and linkage methods; (6) data validation/quality assurance; and (7) the long-term use of data for questions still to be determined. The authors provide a rationale for each recommendation. Future revisions will include new developments in science and updates of data privacy regulations.

Keywords: record linkage; guidelines; standard; personal data; health services research; epidemiology (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2020
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