Lupus Erythematosus Quality of Life Questionnaire (LEQoL): Development and Psychometric Properties

Elena Castellano-Rioja, María del Carmen Giménez-Espert and Ana Soto-Rubio
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Elena Castellano-Rioja: Department of Nursing, Faculty of Nursing, Catholic University of Valencia, 46001 Valencia, Spain
María del Carmen Giménez-Espert: Department of Nursing, Faculty of Nursing and Chiropody, University of Valencia, 46010 Valencia, Spain
Ana Soto-Rubio: Personality, Assessment and Psychological Treatments Department, Faculty of Psychology, University of Valencia, 46010 Valencia, Spain

IJERPH, 2020, vol. 17, issue 22, 1-13

Abstract: Lupus erythematosus (LE) affects patients’ quality of life. Nevertheless, no instrument has been developed to assess the quality of life in systemic lupus erythematosus (SLE) and cutaneous lupus erythematosus (CLE) patients. This study aims to develop and psychometrically test the “Quality of Life of Patients with Lupus Erythematosus Instrument” (LEQoL) and study the quality of life of these patients. Finally, percentiles for interpreting scores of LEQoL in patients with LE are provided. This study is cross-sectional, with a sample of 158 patients recruited from a lupus association for the psychometric evaluation of the final version of LEQoL. The scale’s reliability was assessed by Cronbach’s alpha, composite reliability (CR), and average variance extracted (AVE). Validity was examined through exploratory factorial analyses (EFA) and confirmatory factorial analyses (CFA). The definitive model, composed of 21 items grouped into five factors, presented good psychometric properties. Mean levels of quality of life were observed in patients with systemic LE, with higher values in patients with cutaneous LE. The LEQoL instrument is a useful tool for assessing the quality of life of patients with LE, allowing the evaluation of current clinical practices, the identification of educational needs, and the assessment of the effectiveness of interventions intended to improve the quality of life of patients with LE, SLE, and CLE.

Keywords: instrument; lupus erythematosus; cutaneous; lupus erythematosus; systemic; quality of life (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2020
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