Life Experiences with Using Community Care among People with Severe Physical Disabilities: A Comparative Analysis between South Korea and Japan

Minyoung Lee, Yeji Choi, Eun Young Lee, Dong-A Kim and Seung Hee Ho
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Minyoung Lee: Department of Healthcare and Public Health Research, National Rehabilitation Research Institute, Seoul 01022, Korea
Yeji Choi: Department of Healthcare and Public Health Research, National Rehabilitation Research Institute, Seoul 01022, Korea
Eun Young Lee: Department of Healthcare and Public Health Research, National Rehabilitation Research Institute, Seoul 01022, Korea
Dong-A Kim: Division of Public Medical Rehabilitation, National Rehabilitation Center, Seoul 01022, Korea
Seung Hee Ho: Department of Healthcare and Public Health Research, National Rehabilitation Research Institute, Seoul 01022, Korea

IJERPH, 2020, vol. 17, issue 24, 1-20

Abstract: This study identified the pathways chosen by people with severe physical disabilities (PWSPD) in South Korea and Japan in using community care throughout their life and compared their experiences while navigating these pathways from their perspective. A concurrent nested mixed-method design was adopted. Quantitative data analysis included pathway mapping of facilities and services used throughout their lives. For qualitative data, interpretative phenomenological analysis (IPA) was applied. Eleven South Korean (congenital 7, acquired 4) and nine Japanese (congenital 6, acquired 3) participants were surveyed and interviewed. Pathway mapping was conducted by classifying the participants into focus groups. South Korean participants took nine years more than the Japanese participants to reach independence and showed different pathway characteristics. Superordinate themes from the IPA provided insight into the differences in experiences between PWSPD of the two countries: (1) accessibility and continuity of medical services; (2) experience of vocational training; (3) way and degree of social support for independent living; (4) care planning for receiving comprehensive services. In developing a community care model for the PWSPD to accelerate their time to independence, the government should strive for accessibility and connectivity of medical services, strengthen vocational training, social support for independent living, and information provision for the PWSPD.

Keywords: community care; pathway mapping; interpretive phenomenological analysis; care planning; independent living; people with severe disability (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2020
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