The Suffering of Advanced Chronic Renal Patients and Their Relationship with Symptoms in Loja, Ecuador

Patricia Bonilla-Sierra, Ana Magdalena Vargas-Martínez, Fatima Leon-Larios, Joselin Valeria Arciniega Carrión, Tatiana Cecibel Jiménez Alverca, María de las Mercedes Lomas-Campos and José Rafael González-López
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Patricia Bonilla-Sierra: Health Sciences Department, Private Technical University of Loja, Loja 110107, Ecuador
Ana Magdalena Vargas-Martínez: Nursing Department, Faculty of Nursing, Physiotherapy and Podiatry, Universidad de Sevilla, C/Avenzoar nº6, 41009 Seville, Spain
Fatima Leon-Larios: Nursing Department, Faculty of Nursing, Physiotherapy and Podiatry, Universidad de Sevilla, C/Avenzoar nº6, 41009 Seville, Spain
Joselin Valeria Arciniega Carrión: Health Sciences Department, Private Technical University of Loja, Loja 110107, Ecuador
Tatiana Cecibel Jiménez Alverca: Health Sciences Department, Private Technical University of Loja, Loja 110107, Ecuador
María de las Mercedes Lomas-Campos: Nursing Department, Faculty of Nursing, Physiotherapy and Podiatry, Universidad de Sevilla, C/Avenzoar nº6, 41009 Seville, Spain
José Rafael González-López: Nursing Department, Faculty of Nursing, Physiotherapy and Podiatry, Universidad de Sevilla, C/Avenzoar nº6, 41009 Seville, Spain

IJERPH, 2021, vol. 18, issue 10, 1-11

Abstract: Advanced Chronic Kidney Disease (ACKD) supposes a public health problem in Ecuador that requires a comprehensive approach. In view of the scarcity of studies on the subject in this country, the objective of this research was to determine the signs and symptoms associated with the patients’ physical, social and psychological spheres that allow properly developing palliative care. A longitudinal, prospective and observational study was conducted with ACKD patients. In order to assess the symptomatic burden and suffering of these patients, the Edmonton Symptom Assessment System Revised: renal (ESAS-r) for renal patients and the Distress Thermometer (DT) were used. The sample consisted of a total of 246 patients. The most common symptoms that affect them, causing them suffering in their daily lives, are those related to well-being, difficulty falling asleep and itching. It is necessary that health professionals adapt care measures and help patients undergoing renal treatment, especially those who have suffered the disease for a longer period of time, in order to alleviate the patients’ suffering and therefore improve their daily lives. To such an end, a care plan could be designed that includes early palliative care.

Keywords: palliative care; chronic renal disease; symptoms (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
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