Enhance Access to Pulmonary Rehabilitation with a Structured and Personalized Home-Based Program— reabilitAR: Protocol for Real-World Setting
Sarah Bernard,
Rui Vilarinho,
Inês Pinto,
Rosa Cantante,
Ricardo Coxo,
Rosa Fonseca,
Sagrario Mayoralas-Alises,
Salvador Diaz-Lobato,
João Carvalho,
Cátia Esteves and
Cátia Caneiras
Additional contact information
Sarah Bernard: Centre de Recherche, Institut Universitaire de Cardiologie et de Pneumologie de Québec, Université Laval, Québec, QC G1V 4G5, Canada
Rui Vilarinho: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
Inês Pinto: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
Rosa Cantante: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
Ricardo Coxo: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
Rosa Fonseca: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
Sagrario Mayoralas-Alises: Healthcare Management Department, Hospital Quirón Salud San José, 28002 Madrid, Spain
Salvador Diaz-Lobato: Nippon Gases Healthcare, 28020 Madrid, Spain
João Carvalho: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
Cátia Esteves: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
Cátia Caneiras: Healthcare Department, Nippon Gases Portugal, 4470-177 Maia, Portugal
IJERPH, 2021, vol. 18, issue 11, 1-12
Abstract:
Home-based models represent one of the solutions to respond to the poor accessibility of pulmonary rehabilitation (PR) services in patients with chronic respiratory disease (CRD). The main goal of this protocol is to present the implementation of the first nationwide home-based PR program— reabilitAR —in Portugal and the strategies to assess its benefits in patients with CRD. The program consists of 2 phases: a 12-week intensive phase and a 40-week maintenance phase (total: 52 weeks, 1 year). The intervention in both phases is composed of presential home visits and phone-call follow ups, including exercise training and the self-management educational program Living Well with COPD. Dyspnea, impact of the disease, emotional status, and level of dyspnea during activities of daily living are used as patient-reported outcomes measures. A one-minute sit-to-stand test is used as a functional outcome, and the number of steps as a measure of physical activity. To ensure safety, fall risk and the cognitive function are assessed. Data are collected at baseline, at 12 weeks, at 26 weeks and at 52 weeks. This is the first nationwide protocol on enhancing access to PR, providing appropriate responses to CRD patients’ needs through a structured and personalized home-based program in Portugal.
Keywords: chronic respiratory diseases; COPD; exercise training; self-management; quality of life (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
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Citations: View citations in EconPapers (1)
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Persistent link: https://EconPapers.repec.org/RePEc:gam:jijerp:v:18:y:2021:i:11:p:6132-:d:569919
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