Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence

Katherine M. Boydell, Anne Honey, Helen Glover, Katherine Gill, Barbara Tooth, Francesca Coniglio, Monique Hines, Leonie Dunn and Justin Newton Scanlan
Additional contact information
Katherine M. Boydell: Black Dog Institute, Sydney, NSW 2034, Australia
Anne Honey: School of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia
Helen Glover: Enlightened Consultants, Redland Bay, QLD 4165, Australia
Katherine Gill: Consumer-Led Research Network, University of Sydney, Sydney, NSW 2006, Australia
Barbara Tooth: The Mental Health Services (TheMHS) Network, Balmain, NSW 2000, Australia
Francesca Coniglio: Private Practitioner, Sydney, NSW 2000, Australia
Monique Hines: School of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia
Leonie Dunn: South Eastern Sydney Local Health District, Sydney, NSW 2010, Australia
Justin Newton Scanlan: School of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia

IJERPH, 2021, vol. 18, issue 17, 1-9

Abstract: Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring it to their attention. This paper describes the STELLER study (Supporting the Translation into Everyday Life of Lived-Experience Research), which explores the translation of lived-experience research in the lives of people living with mental illness. Our aim was to use a design thinking approach to develop a range of user-friendly formats to disseminate lived-experience research. A staged design thinking approach was used to develop a translation strategy for lived-experience research. We explored empathy via consumer consultation to understand their perspectives on lived-experience research, refined the design aim, research questions and generated ideas with consumers and mental health professionals, identified the evidence based on lived experience-authored journal articles, worked with design students and peer workers to create a suite of resources and developed prototypes tailored to individual settings and clients. Participatory design thinking strategies are essential to identify the best ways to translate evidence-based lived-experience research via accessible, lay-friendly resources targeted to individuals impacted by mental illness. This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to individuals impacted by mental illness/distress. It provides evidence about a potentially important source of information that can be used to facilitate their recovery.

Keywords: lived-experience research; design thinking; knowledge translation; mental health recovery; co-design (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
References: View complete reference list from CitEc
Citations: View citations in EconPapers (2)

Downloads: (external link)
https://www.mdpi.com/1660-4601/18/17/9250/pdf (application/pdf)
https://www.mdpi.com/1660-4601/18/17/9250/ (text/html)

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:gam:jijerp:v:18:y:2021:i:17:p:9250-:d:627439

Access Statistics for this article

IJERPH is currently edited by Ms. Jenna Liu

More articles in IJERPH from MDPI
Bibliographic data for series maintained by MDPI Indexing Manager ().