Setting-Sensitive Conceptualization and Assessment of Quality of Life in Telemedical Care—Study Protocol of the Tele-QoL Project

Klara Greffin, Holger Muehlan, Neeltje van den Berg, Wolfgang Hoffmann, Oliver Ritter, Michael Oeff, Georg Schomerus and Silke Schmidt
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Klara Greffin: Department of Psychology, University of Greifswald, 17489 Greifswald, Germany
Holger Muehlan: Department of Psychology, University of Greifswald, 17489 Greifswald, Germany
Neeltje van den Berg: Department of Health Care Epidemiology and Community Health, Institute of Community Medicine, University Medicine Greifswald, 17489 Greifswald, Germany
Wolfgang Hoffmann: Department of Health Care Epidemiology and Community Health, Institute of Community Medicine, University Medicine Greifswald, 17489 Greifswald, Germany
Oliver Ritter: Brandenburg Medical School Theodor Fontane, 16816 Neuruppin, Germany
Michael Oeff: Department of Cardiology, Brandenburg City Hospital, 14770 Brandenburg an der Havel, Germany
Georg Schomerus: Department of Psychiatry and Psychotherapy, University Medicine Leipzig, 04103 Leipzig, Germany
Silke Schmidt: Department of Psychology, University of Greifswald, 17489 Greifswald, Germany

IJERPH, 2021, vol. 18, issue 19, 1-13

Abstract: Quality of life (QoL) is a core patient-reported outcome in healthcare research, alongside primary clinical outcomes. A conceptual, operational, and psychometric elaboration of QoL in the context of TM is needed, because standardized instruments to assess QoL do not sufficiently represent essential aspects of intended outcomes of telemedical applications (TM). The overall aim is to develop an instrument that can adequately capture QoL in TM. For that purpose, an extended working model of QoL will be derived. Subsequently, an instrument will be developed and validated that captures those aspects of QoL that are influenced by TM. The initial exploratory study section includes (a) a systematic literature review, (b) a qualitative survey for concept elicitation, and (c) pre-testings using cognitive debriefings with patients and an expert workshop. The second quantitative section consists of an online expert survey and two patient surveys for piloting and validation of the newly developed instrument. The resulting questionnaire will assess central experiences of patients regarding telemedical applications and its impact on QoL more sensitively. Its use as adjunct instrument will lead to a more appropriate evaluation of TM and contribute to the improvement of care tailored to patients’ individual needs.

Keywords: quality of life; telemedicine; patient-reported outcome; questionnaire development; study protocol; chronic disease; mental illness (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
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