Co-Design of a Neurodevelopment Assessment Scale: A Study Protocol

Anne Masi, Syeda Ishra Azim, Christa Lam-Cassettari, Mark Dadds, Antonio Mendoza Diaz, Georgina Henry, Lisa Karlov, Ping-I Lin, Kylie-Ann Mallitt, Alicia Montgomery, Iva Strnadová, Andrew Whitehouse and Valsamma Eapen
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Anne Masi: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Syeda Ishra Azim: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Christa Lam-Cassettari: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Mark Dadds: School of Psychology, Faculty of Science, The University of Sydney, Sydney, NSW 2006, Australia
Antonio Mendoza Diaz: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Georgina Henry: Cerebral Palsy Alliance Research Institute, Faculty of Medicine & Health, The University of Sydney, Sydney, NSW 2006, Australia
Lisa Karlov: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Ping-I Lin: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Kylie-Ann Mallitt: Centre for Big Data Research in Health, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Alicia Montgomery: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Iva Strnadová: School of Education, Faculty of Arts, Design and Architecture, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia
Andrew Whitehouse: Telethon Kids Institute, University of Western Australia, Nedlands, WA 6009, Australia
Valsamma Eapen: School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia

IJERPH, 2021, vol. 18, issue 23, 1-11

Abstract: Neurodevelopmental disorders are a heterogeneous group of conditions with overlapping symptomatology and fluctuating developmental trajectories that transcend current diagnostic categorisation. There is a need for validated screening instruments which dimensionally assess symptomatology from a holistic, transdiagnostic perspective. The primary aim is to co-design a Neurodevelopment Assessment Scale (NAS), a user-friendly transdiagnostic assessment inventory that systematically screens for all signs and symptoms commonly encountered in neurodevelopmental disorders. Our first objective is to undertake development of this tool, utilising co-design principles in partnership with stakeholders, including both those with lived experience of neurodevelopmental disorders and service providers. Our second objective is to evaluate the face validity, as well as the perceived utility, user-friendliness, suitability, and acceptability (i.e., ‘social validity’), of the NAS from the perspective of parents/caregivers and adults with neurodevelopmental disorders, clinicians, and service providers. Our third objective is to ascertain the psychometric properties of the NAS, including content validity and convergent validity. The NAS will provide an efficient transdiagnostic tool for evaluating all relevant signs, symptoms, and the dimensional constructs that underpin neurodevelopmental presentations. It is anticipated that this will maximise outcomes by enabling the delivery of personalised care tailored to an individual’s unique profile in a holistic and efficient manner.

Keywords: neurodevelopmental disorders; neurodevelopment assessment; transdiagnostic; clinical phenotype; scale development (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
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