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Psychometric Validation of the Living with Chronic Illness Scale in Patients with Chronic Heart Failure

Leire Ambrosio, David Perez-Manchon, Gloria Carvajal-Carrascal, Alejandra Fuentes-Ramirez, Neus Caparros, Manuel Ignacio Ruiz de Ocenda, Eva Timonet, Maria Victoria Navarta-Sanchez and Carmen Rodriguez-Blazquez
Additional contact information
Leire Ambrosio: School of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK
David Perez-Manchon: Faculty of Health, Camilo Jose Cela University, 28692 Madrid, Spain
Gloria Carvajal-Carrascal: Facultad de Enfermería y Rehabilitación, Universidad de La Sabana, Bogotá 53753, Colombia
Alejandra Fuentes-Ramirez: Facultad de Enfermería y Rehabilitación, Universidad de La Sabana, Bogotá 53753, Colombia
Neus Caparros: Faculty of Legal and Social Science, La Rioja University, 26004 La Rioja, Spain
Manuel Ignacio Ruiz de Ocenda: La Rioja Health Care System, 26001 La Rioja, Spain
Eva Timonet: Department of Cardiology, Costa del Sol Hospital, 29603 Malaga, Spain
Maria Victoria Navarta-Sanchez: Faculty of Medicine, Autonomous University of Madrid, 28029 Madrid, Spain
Carmen Rodriguez-Blazquez: National Centre of Epidemiology and CIBERNED, Carlos III Institute of Health, 28029 Madrid, Spain

IJERPH, 2021, vol. 18, issue 2, 1-14

Abstract: It is necessary to develop self-reported instruments that evaluate the process of living with chronic heart failure (HF) holistically. The Living with Chronic Illness Scale—HF (LW-CI-HF) is the only available tool to evaluate how patients are living with HF. The aim is to analyse the psychometric properties of the LW-CI scale in the HF population. An international, cross-sectional validation study was carried out in 603 patients living with HF from Spain and Colombia. The variables measured were living with HF, perceived social support, satisfaction with life, quality of life and global impression of severity. The LW-CI-HF scale presented good data quality and acceptability. All domains showed high internal consistency with Cronbach’s alpha coefficient ≥ 0.7. The intraclass correlation coefficient for the total score was satisfactory (0.9) in test–retest reliability. The LW-CI-HF correlated 0.7 with social support and quality of life measures. Standard error of measurement was 6.5 for total scale. The LW-CI-HF scale is feasible, reliable and valid. However, results should be taken with caution in order to be used in clinical practice to evaluate the complex process of living with HF. Further research is proposed.

Keywords: chronic illness; chronic heart failure; psychometric properties; self-reported outcome; instrument (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
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