Cross-Cultural Adaptation and Evaluation of the Participation and Environment Measure for Children and Youth to the Indian Context—A Mixed-Methods Study

Roopa Srinivasan, Vrushali Kulkarni, Sana Smriti, Rachel Teplicky and Dana Anaby
Additional contact information
Roopa Srinivasan: Ummeed Child Development Center, Department of Developmental Pediatrics and Occupational Therapy, Mumbai 400011, Maharashtra, India
Vrushali Kulkarni: Ummeed Child Development Center, Department of Developmental Pediatrics and Occupational Therapy, Mumbai 400011, Maharashtra, India
Sana Smriti: Butterflies Child Development Centre, Hyderabad 500081, Telangana, India
Rachel Teplicky: CanChild Center for Childhood Disability Research, McMaster University, Hamilton, ON L8S 4L8, Canada
Dana Anaby: School of Physical and Occupational Therapy, McGill University, Montreal, QC H3G 1Y5, Canada

IJERPH, 2021, vol. 18, issue 4, 1-16

Abstract: Culturally appropriate measures enable knowledge transfer and quality improvement of rehabilitation services in diverse contexts. The Applied Cultural Equivalence Framework (ACEF) was used in a two-phased mixed methods study to adapt and evaluate the Participation and Environment Measure-Children and Youth (PEM-CY) in India. Cognitive interviews with caregivers of children with disabilities ( n = 15) aged 5–17 years established conceptual, item, semantic, and operational equivalence of the Indian PEM-CY. Construct validity was assessed by comparing PEM-CY scores of children with and without disabilities ( n = 130) using a case-control design. Cognitive interviews resulted in operational (60.3%), semantic (26.4%), and item-level (13.2%) modifications in the PEM-CY with no changes at the conceptual level. Internal consistency ( n = 130) was acceptable to excellent (0.61–0.87) on most scales. Test–retest reliability ( n = 30) was good to excellent (ICC ? 0.75, Kappa 0.6–1.0) for most scales. Significant differences in all PEM-CY summary scores were found between children with and without disabilities, except for environmental supports. Children with disabilities had lower scores on frequency and involvement in activities across all settings; their caregivers desired greater change in participation and reported experiencing more environmental barriers across settings. Findings suggest the adapted PEM-CY is a valid and reliable measure for assessing the participation of Indian children.

Keywords: rehabilitation; PEM-CY; participation; cultural adaptation; India (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
References: View references in EconPapers View complete reference list from CitEc
Citations:

Downloads: (external link)
https://www.mdpi.com/1660-4601/18/4/1514/pdf (application/pdf)
https://www.mdpi.com/1660-4601/18/4/1514/ (text/html)

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:gam:jijerp:v:18:y:2021:i:4:p:1514-:d:494018

Access Statistics for this article

IJERPH is currently edited by Ms. Jenna Liu

More articles in IJERPH from MDPI
Bibliographic data for series maintained by MDPI Indexing Manager ().