Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention

Laura Esteban, Patricia Navas, Miguel Ángel Verdugo and Víctor B. Arias
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Laura Esteban: Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain
Patricia Navas: Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain
Miguel Ángel Verdugo: Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain
Víctor B. Arias: Institute on Community Inclusion and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain

IJERPH, 2021, vol. 18, issue 6, 1-19

Abstract: People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work analyzes the extent to which professional practices are aimed at promoting the right to community living for people with ID and extensive support needs, as well as the rights that are particularly linked to it, such as the right to habilitation and rehabilitation and the right to privacy. A specific questionnaire was designed and administered to 729 adults with intellectual disability ( M = 37.05; DT = 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs.

Keywords: intellectual disability; extensive support needs; rights; community living; privacy; rehabilitation; professional practices (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (1)

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