Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study

Silvana B. Napoli, María Paula Vitale, Pablo J. Cafiero, María Belén Micheletti, Paula Pedernera Bradichansky, Celina Lejarraga, Maria Gabriela Urinovsky, Anabella Escalante, Estela Rodriguez and Verónica Schiariti
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Silvana B. Napoli: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
María Paula Vitale: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
Pablo J. Cafiero: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
María Belén Micheletti: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
Paula Pedernera Bradichansky: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
Celina Lejarraga: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
Maria Gabriela Urinovsky: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
Anabella Escalante: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
Estela Rodriguez: Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina
Verónica Schiariti: Division of Medical Sciences, University of Victoria, Victoria, BC V8W 2Y2, Canada

IJERPH, 2021, vol. 18, issue 7, 1-18

Abstract: Background: Autism spectrum disorder (ASD) affects the daily functioning of children and their families; however, in Argentina, there are no standardized tools to guide the description, evaluation, and follow-up of functioning and disability of children with ASD. To fill this gap, the overarching purpose of this study was to create a novel tool guided by the International Classification of Functioning, Disability, and Health (ICF) Core Sets for ASD for clinical practice. Methods: A multistep methodology was used to identify the most relevant ICF categories for an Argentinian clinical setting. The content of this ICF-based shortlist was piloted and revised according to the results. Subsequently, a toolbox of measures was proposed to operationalize each ICF category. Finally, profiles of the functioning of 100 children with ASD were created. Results: An ICF-based tool called TEA-CIFunciona was created, consisting of 32 ICF categories (10 body functions, 15 activities and participation, 7 environmental factors categories). The application of TEA-CIFunciona incorporated a family-centered approach in ASD evaluations and helped identify functional needs. Conclusions: TEA-CIFunciona is the first ICF-based instrument that guides the description of functioning of children with ASD in Argentina. TEA-CIFunciona standardizes collaborative assessments in pediatric ASD populations in Latin American contexts.

Keywords: ICF; autism spectrum disorder; functioning; child; measure; assessment (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2021
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