Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: A Qualitative Descriptive Study

Nicole Hayes, Lisa K. Akison, Sarah Goldsbury, Nicole Hewlett, Elizabeth J. Elliott, Amy Finlay-Jones, Dianne C. Shanley, Kerryn Bagley, Andi Crawford, Haydn Till, Alison Crichton, Rowena Friend, Karen M. Moritz, Raewyn Mutch, Sophie Harrington, Andrew Webster and Natasha Reid
Additional contact information
Nicole Hayes: Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia
Lisa K. Akison: Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia
Sarah Goldsbury: Māori Indigenous Health Innovation, University of Otago Christchurch, Christchurch 8013, New Zealand
Nicole Hewlett: Centre for Healthcare Transformation, Queensland University of Technology, Brisbane, QLD 4059, Australia
Elizabeth J. Elliott: Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, NSW 2006, Australia
Amy Finlay-Jones: Telethon Kids Institute, Perth, WA 6009, Australia
Dianne C. Shanley: Menzies Health Institute of Queensland, Griffith University, Gold Coast, QLD 4222, Australia
Kerryn Bagley: La Trobe Rural Health School, La Trobe University, Bendigo, VIC 3552, Australia
Andi Crawford: Department of Psychological Medicine, Faculty of Medical and Health Science, The University of Auckland, Auckland 1023, New Zealand
Haydn Till: Child Development Service, Gold Coast Hospital and Health Service, Southport, QLD 4215, Australia
Alison Crichton: Victoria Fetal Alcohol Service, Monash Children’s Hospital, Clayton, VIC 3163, Australia
Rowena Friend: Patches Assessment Service, Berrimbah, NT 0828, Australia
Karen M. Moritz: Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia
Raewyn Mutch: Telethon Kids Institute, Perth, WA 6009, Australia
Sophie Harrington: National Organisation for Fetal Alcohol Spectrum Disorder Australia, Adelaide, SA 5000, Australia
Andrew Webster: West Moreton Health, Ipswich, QLD 4305, Australia
Natasha Reid: Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia

IJERPH, 2022, vol. 19, issue 10, 1-20

Abstract: Since the 2016 release of the Australian Guide to the Diagnosis of Fetal Alcohol Spectrum Disorder (FASD), considerable progress has been made in the identification and diagnosis of the disorder. As part of a larger process to review and update the Guide, the aim of this study was to identify review priorities from a broad range of stakeholders involved in the assessment and diagnosis of FASD. Sixty-two stakeholders, including healthcare practitioners, researchers, other specialists, individuals with cultural expertise, lived experience and consumer representatives completed an online survey asking them to describe up to five priorities for the review of the Australian Guide to the Diagnosis of FASD. A total of 267 priorities were described. Content analysis of responses revealed priority areas relating to diagnostic criteria ( n = 82, 30.7%), guideline content ( n = 91, 34.1%), guideline dissemination ( n = 15, 5.6%) and guideline implementation ( n = 63, 23.6%). Other considerations included prevention and screening of FASD ( n = 16, 6%). Engaging stakeholders in setting priorities will ensure the revised Australian Guide can be as relevant and meaningful as possible for the primary end-users and that it meets the needs of individuals with lived experience who will be most affected by the diagnosis.

Keywords: fetal alcohol spectrum disorder; prenatal alcohol exposure; clinical guidelines; assessment and diagnosis (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (2)

Downloads: (external link)
https://www.mdpi.com/1660-4601/19/10/5823/pdf (application/pdf)
https://www.mdpi.com/1660-4601/19/10/5823/ (text/html)

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:gam:jijerp:v:19:y:2022:i:10:p:5823-:d:812527

Access Statistics for this article

IJERPH is currently edited by Ms. Jenna Liu

More articles in IJERPH from MDPI
Bibliographic data for series maintained by MDPI Indexing Manager ().