Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers

Ramón García-Perales, Ascensión Palomares-Ruiz, Lydia Ordóñez-García and Eduardo García-Toledano
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Ramón García-Perales: Department of Pedagogy, Faculty of Education of Albacete, University of Castilla-La Mancha (UCLM), 02071 Albacete, Spain
Ascensión Palomares-Ruiz: Department of Pedagogy, Faculty of Education of Albacete, University of Castilla-La Mancha (UCLM), 02071 Albacete, Spain
Lydia Ordóñez-García: Department of Pedagogy, Faculty of Education of Albacete, University of Castilla-La Mancha (UCLM), 02071 Albacete, Spain
Eduardo García-Toledano: Department of Pedagogy, Faculty of Education of Albacete, University of Castilla-La Mancha (UCLM), 02071 Albacete, Spain

IJERPH, 2022, vol. 19, issue 10, 1-16

Abstract: Background: Education plays a fundamental role in everyone’s wellbeing. That means it is essential to provide quality inclusive activities to ensure equity and equality of opportunity in order to shape a cohesive, democratic, healthy society. Methods: In this study we focus on how inclusive educational practice addresses students with rare diseases, looking at teachers’ knowledge and opinions in this regard. A questionnaire was administered to 574 teachers who taught in various stages of non-university education to determine their knowledge and opinions about different dimensions: conceptualization, legislation, intervention, and diagnosis. Results: The results suggested various ideas for improvement in pursuit of positive, real inclusion, such as the need to improve teachers’ knowledge and understanding of these students’ characteristics and potential, with widespread specific training being urgently needed. Conclusions: in summary, students’ rights to education without discrimination is a basic premise of an educational system, leading to the need for a complete educational response that allows each student to develop as a person.

Keywords: rare disease; education; inclusion; teachers; knowledge and perception (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (1)

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