Validation of PARADISE 24 and Development of PARADISE-EDEN 36 in Patients with Dementia

Francesco Talarico, Carolina Fellinghauer, Giuseppe Andrea De Biase, Pietro Gareri, Sebastiano Capurso, Paolo Moneti, Angela Caruso, Valentina Chiatante, Emanuela Gentile, Monica Malerba, Laura Marsico, Maria Mauro, Maria Magro, Andrea Melendugno, Fabio Pirrotta, Luana Putrino, Carla Putrino, Anna Propati, Vincenzo Rotondaro, Fausto Spadea, Angela Villella and Alba Malara
Additional contact information
Francesco Talarico: Fondazione ANASTE-Humanitas via dei Gracchi, 00192 Roma, Italy
Carolina Fellinghauer: Data Fittery GmbH, 4665 Oftringen, Switzerland
Giuseppe Andrea De Biase: Fondazione ANASTE-Humanitas via dei Gracchi, 00192 Roma, Italy
Pietro Gareri: Center for Cognitive Disorders and Dementia (CDCD), Catanzaro Lido, ASP Catanzaro, 88100 Catanzaro, Italy
Sebastiano Capurso: RSA Bellosguardo, ANASTE Lazio, 00053 Civitavecchia, Italy
Paolo Moneti: RSA Villa Gisella, ANASTE Toscana, 50100 Firenze, Italy
Angela Caruso: RSA La Quiete, ANASTE Calabria, 87040 Castiglione Cosentino, Italy
Valentina Chiatante: Casa Protetta Villa Azzurra, ANASTE Calabria, 87070 Roseto Capo Spulico, Italy
Emanuela Gentile: Casa Protetta Madonna del Rosario, ANASTE Calabria, 88046 Lamezia Terme, Italy
Monica Malerba: Centro Residenziale e di Riabilitazione San Domenico, ANASTE Calabria, 88046 Lamezia Terme, Italy
Laura Marsico: RSA La Quiete, ANASTE Calabria, 87040 Castiglione Cosentino, Italy
Maria Mauro: RSA Casa Amica, ANASTE Calabria, 88050 Fossato Serralta, Italy
Maria Magro: RSA Casa Amica, ANASTE Calabria, 88050 Fossato Serralta, Italy
Andrea Melendugno: O.P.S.A. Opera Provvidenza Sant’Antonio, C.S. Casa Madre Teresa di Calcutta, 35030 Sarmeola, Italy
Fabio Pirrotta: Fondazione Betania Onlus, 88100 Catanzaro, Italy
Luana Putrino: Centro Residenziale e di Riabilitazione San Domenico, ANASTE Calabria, 88046 Lamezia Terme, Italy
Carla Putrino: Centro Residenziale e di Riabilitazione San Domenico, ANASTE Calabria, 88046 Lamezia Terme, Italy
Anna Propati: Casa Protetta Villa Azzurra, ANASTE Calabria, 87070 Roseto Capo Spulico, Italy
Vincenzo Rotondaro: Casa Protetta Villa Azzurra, ANASTE Calabria, 87070 Roseto Capo Spulico, Italy
Fausto Spadea: RSA Casa Amica, ANASTE Calabria, 88050 Fossato Serralta, Italy
Angela Villella: Casa Protetta Madonna del Rosario, ANASTE Calabria, 88046 Lamezia Terme, Italy
Alba Malara: Fondazione ANASTE-Humanitas via dei Gracchi, 00192 Roma, Italy

IJERPH, 2022, vol. 19, issue 11, 1-21

Abstract: Dementia was one of the conditions focused on in an EU (European Union) project called “PARADISE” (Psychosocial fActors Relevant to brAin DISorders in Europe) that later produced a measure called PARADISE 24, developed within the biopsychosocial model proposed in the International Classification of Functioning Disability and Health (ICF). The aims of this study are to validate PARADISE 24 on a wider sample of patients with mild to moderate dementia to expand PARADISE 24 by defining a more specific scale for dementia, by adding 18 questions specifically selected for dementia, which eventually should be reduced to 12. We enrolled 123 persons with dementia, recruited between July 2017 and July 2019 in home care and long-term care facilities, in Italy, and 80 participants were recruited in Warsaw between January and July 2012 as part of a previous cross-sectional study. The interviews with the patient and/or family were conducted by health professionals alone or as a team by using the Paradise data collection protocol. The psychometric analysis with the Rasch analysis has shown that PARADISE 24 and the selection of 18 additional condition-specific items can be expected to have good measurement properties to assess the functional state in persons with dementia.

Keywords: PARADISE-EDEN scale; ICF; dementia; functional state; long term care (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
References: View references in EconPapers View complete reference list from CitEc
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