Content Validity Assessment of the Revised Illness Perception Questionnaire in CKD Using Qualitative Methods

Eleanor Rivera, Kristin Levoy, Maya N. Clark-Cutaia, Sarah Schrauben, Raymond R. Townsend, Mahboob Rahman, James Lash, Milda Saunders, Rebecca Frazier, Hernan Rincon-Choles and Karen B. Hirschman
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Eleanor Rivera: Department of Population Health Nursing Science, College of Nursing, University of Illinois Chicago, Chicago, IL 60612, USA
Kristin Levoy: Department of Community and Health Systems, Indiana University School of Nursing, Bloomington, IN 47408, USA
Maya N. Clark-Cutaia: Rory Meyers College of Nursing, New York University, New York, NY 10010, USA
Sarah Schrauben: Division of Renal, Electrolyte, and Hypertension, Department of Biostatistics, Epidemiology, and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, USA
Raymond R. Townsend: Division of Renal, Electrolyte, and Hypertension, Department of Biostatistics, Epidemiology, and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, USA
Mahboob Rahman: Division of Nephrology and Hypertension, Department of Medicine, University Hospitals Cleveland Medical Center, Case Western Reserve University, Cleveland, OH 44195, USA
James Lash: Division of Nephrology, College of Medicine, University of Illinois Chicago, Chicago, IL 60612, USA
Milda Saunders: Department of Medicine, University of Chicago, Chicago, IL 60637, USA
Rebecca Frazier: Division of Nephorology and Hypertension, Feinberg School of Medicine, Northwestern University, Chicago, IL 60611, USA
Hernan Rincon-Choles: Cleveland Clinic, Cleveland, OH 44195, USA
Karen B. Hirschman: Department of Biobehavioral Health Sciences, School of Nursing, University of Pennsylvania, Philadelphia, PA 19104, USA

IJERPH, 2022, vol. 19, issue 14, 1-9

Abstract: Background: The Revised Illness Perception Questionnaire (IPQ-R) measures individuals’ unique perceptions of their illness. While psychometric properties of the IPQ-R have been demonstrated in many disease populations, its content validity has not been extensively studied in non-dialysis chronic kidney disease (CKD). Unique features of CKD (e.g., few symptoms in early stages) may impact the measurement of illness perceptions. The purpose of this study was to explore the IPQ-R content validity in a sample of CKD patients. Methods: Thirty-one participants completed the IPQ-R and were interviewed regarding their subscale scores (timeline, consequences, personal control, treatment control, coherence, cyclical, and emotions). Participants’ agreement with their scores was tallied and assessed qualitatively for themes related to the content validity of the measure. Results: Individual participant agreement with their subscale scores averaged 79% (range: 29–100%). Subscale agreement varied: timeline (100%), consequences, coherence, and emotion (83% each), cyclical (75%), personal control (65%), and treatment control (64%). A qualitative exploration of disagreement responses revealed concerns with the relevance and comprehensibility of personal control and treatment control. Conclusions: Some IPQ-R subscales may pose content validity concerns in the non-dialysis CKD population. Item modification for comprehensibility (personal control) and relevance (treatment control) should be considered. Future studies should explore the impact of a patient’s symptom experience on IPQ-R validity, especially in populations like CKD with a higher proportion of asymptomatic patients.

Keywords: illness perceptions; chronic kidney disease; content validity; psychometric testing; illness perception questionnaire; illness representation (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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