Adapting a Cancer Screening Education Program for Native American Women with Disabilities

Julie S. Armin, Heather J. Williamson, Andria Begay, Jennifer Etcitty, Agnes Attakai, Kim Russell and Julie A. Baldwin
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Julie S. Armin: Department of Family and Community Medicine, College of Medicine, The University of Arizona, 655 North Alvernon Way, Tucson, AZ 85711, USA
Heather J. Williamson: Department of Occupational Therapy, Center for Health Equity Research, Northern Arizona University, 1395 Knoles Drive, Flagstaff, AZ 86011, USA
Andria Begay: Center for Health Equity Research, Northern Arizona University, 1395 Knoles Drive, Flagstaff, AZ 86011, USA
Jennifer Etcitty: Center for Health Equity Research, Northern Arizona University, 1395 Knoles Drive, Flagstaff, AZ 86011, USA
Agnes Attakai: Mel and Enid Zuckerman College of Public Health, The University of Arizona, 1295 N Martin Ave, Tucson, AZ 85724, USA
Kim Russell: Arizona Advisory Council on Indian Health Care, 801 E. Jefferson St., Phoenix, AZ 85034, USA
Julie A. Baldwin: Department of Health Sciences, Center for Health Equity Research, Northern Arizona University, 1395 Knoles Drive, Flagstaff, AZ 86011, USA

IJERPH, 2022, vol. 19, issue 15, 1-15

Abstract: Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.

Keywords: Native American health; disability; cancer disparities; breast cancer; cervical cancer; cancer screenings; cancer education (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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