Supporting the Community to Embrace Individuals with Dementia and to Be More Inclusive: Findings of a Conceptual Framework Development Study

Valentina Bressan, Allette Snijder, Henriette Hansen, Kim Koldby, Knud Damgaard Andersen, Natalia Allegretti, Federica Porcu, Sara Marsillas, Alvaro García and Alvisa Palese ()
Additional contact information
Valentina Bressan: Department of Medicine, University of Udine, Viale Ungheria 20, 33100 Udine, Italy
Allette Snijder: Healthy Ageing Network Northern Netherlands, Peizerweg 140H, 9727 AP Groningen, The Netherlands
Henriette Hansen: South Denmark European Office, Av. Palmerston 18, 1000 Bruxelles, Belgium
Kim Koldby: Department for Further Education, University College Lillebaelt, Niels Bohrs Allé 1, 5230 Odense, Denmark
Knud Damgaard Andersen: Odense Kommune, Department for the Elderly and Persons with Disabilities (ÆHF), Flakhaven 2, 5000 Odense, Denmark
Natalia Allegretti: Connected Health Alliance CIC, 13A Ballyhoy Avenue, D05 K068 Dublin, Ireland
Federica Porcu: Connected Health Alliance CIC, 13A Ballyhoy Avenue, D05 K068 Dublin, Ireland
Sara Marsillas: Matia Gerontological Institute, Pinu Bidea, 35, 20018 Donostia-San Sebastián, Spain
Alvaro García: Matia Gerontological Institute, Pinu Bidea, 35, 20018 Donostia-San Sebastián, Spain
Alvisa Palese: Department of Medicine, University of Udine, Viale Ungheria 20, 33100 Udine, Italy

IJERPH, 2022, vol. 19, issue 16, 1-14

Abstract: The number of community-dwelling people with dementia (PwD) is rising, and the role of their relatives is crucial in addressing and mitigating the implications of dementia on health care systems and on society. We developed a new conceptual framework to promote the collaboration of the community in supporting relatives who are caring for a PwD as well as a range of stakeholders in embracing dementia. A qualitatively driven, multi-method study divided into three phases was performed from 2019 to 2021. A qualitative descriptive study, a mixed-method systematic review and three consensus workshops were conducted, and their results were triangulated. The final version of the Community Collaboration Concept Framework is composed of three main domains based upon seven components: (1) embracing dementia; (2) creating empowerment and a sense of community; (3) collaborating through cocreation and design thinking. The new framework is based on the literature, the synthesis of empirical data and the consensus of a panel of international experts, supporting the global goal of improving community inclusiveness and collaboration. Further studies are needed to confirm its validity, how it should be implemented in practice in various settings and to propose improvements when designing projects based upon it.

Keywords: conceptual framework; community collaboration; dementia; family caregiver; people with dementia; policymaker (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
References: View references in EconPapers View complete reference list from CitEc
Citations: View citations in EconPapers (1)

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