Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis

Courtney Ryder (), Jacqueline H. Stephens, Shahid Ullah, Julieann Coombes, Nayia Cominos, Patrick Sharpe, Shane D’Angelo, Darryl Cameron, Colleen Hayes, Keziah Bennett-Brook and Tamara Mackean
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Courtney Ryder: College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
Jacqueline H. Stephens: College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
Shahid Ullah: College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
Julieann Coombes: The George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia
Nayia Cominos: College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
Patrick Sharpe: Far West Community Partnerships, Ceduna, SA 5690, Australia
Shane D’Angelo: College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
Darryl Cameron: Moorundi Aboriginal Community Controlled Health Service, Lot 1 Wharf Road, Murray Bridge, SA 5253, Australia
Colleen Hayes: College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
Keziah Bennett-Brook: The George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia
Tamara Mackean: College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia

IJERPH, 2022, vol. 19, issue 16, 1-13

Abstract: (1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can vary significantly. This scoping review describes the psychometric and community engagement processes for PROMs and surveys developed for Aboriginal and Torres Strait Islander communities. (2) Methods: The PRISMA ScR guidelines for scoping reviews were followed, aimed at those PROMs and surveys that underwent psychometric assessment. The Aboriginal and Torres Strait Islander Quality Appraisal Tool and a narrative synthesis approach were used. (3) Results: Of 1080 articles, 14 were eligible for review. Most articles focused on a validity assessment of PROMs and surveys, with reliability being less common. Face validity with Aboriginal and Torres Strait Islander communities was reported in most studies, with construct validity through exploratory factor analyses. Methodological design risks were identified in the majority of studies, notably the absence of explicit Indigenous knowledges. Variability existed in the development of PROMs and surveys for Aboriginal and Torres Strait Islander communities. (4) Conclusions: Improvement in inclusion of Indigenous knowledges and research approaches is needed to ensure relevance and appropriate PROM structures. We provide suggestions for research teams to assist in future design.

Keywords: Aboriginal and Torres Strait Islander; survey; methods (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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