Web-Based Patient-Reported Outcomes for ENT Patients—Evaluation of the Status Quo, Patients’ View, and Future Perspectives

Theresa Wald (), Veit Zebralla, Maren Boege, Viktor Kunz, Thomas Neumuth, Andreas Dietz, Gunnar Wichmann and Susanne Wiegand
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Theresa Wald: Department of Otorhinolaryngology, Head and Neck Surgery, University of Leipzig Medical Centre, 04103 Leipzig, Germany
Veit Zebralla: Department of Otorhinolaryngology, Head and Neck Surgery, University of Leipzig Medical Centre, 04103 Leipzig, Germany
Maren Boege: Department of Otorhinolaryngology, Head and Neck Surgery, University of Leipzig Medical Centre, 04103 Leipzig, Germany
Viktor Kunz: Department of Otorhinolaryngology, Head and Neck Surgery, University of Leipzig Medical Centre, 04103 Leipzig, Germany
Thomas Neumuth: Innovation Center Computer Assisted Surgery, University of Leipzig, 04103 Leipzig, Germany
Andreas Dietz: Department of Otorhinolaryngology, Head and Neck Surgery, University of Leipzig Medical Centre, 04103 Leipzig, Germany
Gunnar Wichmann: Department of Otorhinolaryngology, Head and Neck Surgery, University of Leipzig Medical Centre, 04103 Leipzig, Germany
Susanne Wiegand: Department of Otorhinolaryngology, Head and Neck Surgery, University of Leipzig Medical Centre, 04103 Leipzig, Germany

IJERPH, 2022, vol. 19, issue 18, 1-16

Abstract: Background: Patient-reported outcomes (PRO) assess disease burden and indicate unmet needs. Home-based electronic PRO measures (ePROMs) can support tumor aftercare (TAC). Creating an ePROM is the next step after implementing the software “OncoFunction” to assess PROs during TAC of head- and neck-cancer patients (HNC). Therefore, internet use and perception on ePROMs of ENT and TAC patients were evaluated. Methods: From May–July 2020, ENT patients at a high-volume outpatient department aged >18 without need for emergency treatment were invited to complete a questionnaire concerning internet use and access, hardware, and opinion on the chances, requirements, and designs of ePROMs. Results: 415 questionnaires were evaluated; 46.3% of the respondents visited the common consultation hour (CCH) and 44.3% TAC; 71.9% were internet users, being younger than non-internet users; and 36.4% of TAC patients were non-internet users and 16.3% of them were without a web-enabled device. Significant differences existed in age and assessment of future perspectives between internet-/non-internet users and TAC/CCH patients, respectively. Regarding the design of ePROMs, patients preferred quarterly and short surveys. Data safety and feedback were important. Conclusions: ePROMs are not suitable for everyone because of missing internet access and experience. A tailored approach to implement ePROMs in TAC is needed.

Keywords: eHealth; patient-reported outcome; tumor aftercare; web-based; head and neck cancer; new media (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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