Feasibility of Patient Reported Outcome Measures in Psychosocial Palliative Care: Observational Cohort Study of Hospice Day Care and Social Support Groups

Natasha Bradley (), Christopher Dowrick and Mari Lloyd-Williams
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Natasha Bradley: Centre for Health & Clinical Research, University of the West of England, Bristol BS16 1DD, UK
Christopher Dowrick: Department of Primary Care and Mental Health, University of Liverpool, Liverpool L69 3BX, UK
Mari Lloyd-Williams: Department of Primary Care and Mental Health, University of Liverpool, Liverpool L69 3BX, UK

IJERPH, 2022, vol. 19, issue 20, 1-17

Abstract: Palliative care patients can be at risk of social isolation or loneliness. Interventions that can provide effective social support, and particularly emotional support, could facilitate healthy coping that bolsters quality of life and reduces depression in palliative care patients. This is an observational cohort study which recruited thirty patients ( n = 30) from the day services of four independent hospices in England. Participants completed patient reported outcome measures in perceived social support, loneliness, and depression, at up to three time points. Age range was 56–91 years, males and females were equally represented, and the sample was 93% white British. In participants that provided two or more timepoints, perceived social support increased, and loneliness and depression decreased. Largest changes with the least variation between participants was in emotional support ( p = 0.165) and loneliness ( p = 0.104). These results suggest that the psychosocial patient reported outcome measures used (MOS-SS, UCLA, BEDS) could be sensitive to change aligned with the goals of this intervention in palliative care. Participants in this study were observed to derive psychosocial benefit from attending the hospice day service.

Keywords: palliative care; hospice day care; social support; patient reported outcome measures (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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