Getting the FACS: A Protocol for Developing a Survey Instrument to Measure Carer and Family Engagement with Mental Health Services

Darryl Maybery (), Andrea Reupert, Irene Casey Jaffe, Rose Cuff, Zoe Duncan, Addy Dunkley-Smith, Anne Grant, Melissa Kennelly, Bjørg Eva Skogøy, Bente Weimand and Torleif Ruud
Additional contact information
Darryl Maybery: Department of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia
Andrea Reupert: School of Educational Psychology & Counselling, Monash University, Melbourne 3800, Australia
Irene Casey Jaffe: Harvard T.H. Chan School of Public Health, Harvard University, Boston, MA 02115, USA
Rose Cuff: Satellite Foundation, Melbourne Central, Melbourne 3000, Australia
Zoe Duncan: Department of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia
Addy Dunkley-Smith: Department of Rural Health & Indigenous Health, Monash University, Warragul 3820, Australia
Anne Grant: School of Nursing and Midwifery, Queen’s University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK
Melissa Kennelly: Department of Rural Health & Indigenous Health, Monash University, FaPMI Strategy, Mildura 3500, Australia
Bjørg Eva Skogøy: Nordland Research Institute, 8049 Bodø, Norway
Bente Weimand: Center for Mental Health and Substance Abuse, University of South-Eastern Norway, 3004 Drammen, Norway
Torleif Ruud: Division Mental Health Services, Akershus University Hospital, 1478 Lørenskog, Norway

IJERPH, 2022, vol. 19, issue 23, 1-10

Abstract: Government policies recommend, and all stakeholders benefit, when mental health services meaningfully engage with carers and family. However, health service engagement with carers is inadequate, and often non-existent with children whose parents are service users. There are seven fundamental ways that carers and families want to be integrated with and engaged by health services but current survey instruments do not capture these seven engagement practices. This protocol describes the development of two closely aligned Family and Carer Surveys (FACS) to measure engagement of service users in mental health services. The new measures are based on the seven engagement themes and a conceptual distinction between the carer and family, with particular focus on where the service user is a parent. The instruments will be developed in five stages; (1) item generation (2) Cognitive pretesting of survey (3) preliminary item content quantitative assessment (4) psychometric analysis of a large data collection and (5) selection of items for short form instruments. These steps will operationalise the seven fundamental ways that families and carers want to be engaged with mental health services, thereby providing valid and reliable measures for use in research and benchmarking of carer and family engagement.

Keywords: parental mental and physical illness and disability; young carers; youth adjustment to parental illness; family health (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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