A Journey towards Resilience: Coping Strategies Adopted by Parents with Children Having Autism Spectrum Disorder in Northeast Malaysia

Wan Natrah Wan Yaacob, Lili Husniati Yaacob, Maryam Mohd Zulkifli and Rosediani Muhamad
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Wan Natrah Wan Yaacob: Department of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Kota Bharu 16150, Malaysia
Lili Husniati Yaacob: Department of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Kota Bharu 16150, Malaysia
Maryam Mohd Zulkifli: Department of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Kota Bharu 16150, Malaysia
Rosediani Muhamad: Department of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Kota Bharu 16150, Malaysia

IJERPH, 2022, vol. 19, issue 4, 1-11

Abstract: Background: The prevalence of Autism Spectrum Disorder (ASD) has been increasing for the past two decades. Parents with autism have been known to be at risk of psychological distress and maladaptation, but many parents were able to overcome this adversity and lead to a good quality of life. Methods: In-depth interviews were conducted among 21 parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis. Results: The analysis discovered three main themes: acceptance and positive outlook, reaching for helping hands, and understanding autism and finding its solutions. Conclusions: Although the findings cannot be generalised to other populations with ASD, this study provides a detailed perspective on their unique coping strategies. Insights gained from this study could help health care providers, authorities, and communities to address a specific need and able to advocate relevant support measures to assist them.

Keywords: autism; parents; coping; resilience (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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