Palliative Care Needs Assessment in the Population Living in Mayotte: SPMAYOTTE, a Qualitative Study Conducted with 62 Patients, Caregivers and Healthcare Professionals

Raphaël Benoist, Philippe Walker, Karine Allain-Baco and Régis Aubry
Additional contact information
Raphaël Benoist: Mobile Palliative Care Unit, Centre Hospitalier Universitaire de La Réunion, Site Félix Guyon, 97400 Saint Denis, France
Philippe Walker: Mobile Palliative Care Unit, Centre Hospitalier Ouest Réunion, 97460 Saint Paul, France
Karine Allain-Baco: Mobile Palliative Care Unit, Centre Hospitalier de Mayotte, 97600 Mamoudzou, France
Régis Aubry: INSERM CIC 1431, Centre Hospitalier Universitaire Jean Minjoz, 25000 Besançon, France

IJERPH, 2022, vol. 19, issue 6, 1-14

Abstract: Background/Aim: Mayotte is a French island in the Indian Ocean. There is no palliative care structure in this territory. The island and its population have specific characteristics: insularity, poverty, coexistence of modern and traditional medicine, importance of religion (Islam) and the presence of many foreigners without health insurance. The aim of this study is to determine the palliative care needs of the Mayotte population and propose the establishment of an appropriate service. Methods: A qualitative study was conducted in Mayotte using interviews with patients and their caregivers, and focus groups were conducted with healthcare professionals involved in their care. Patients requiring palliative care were identified and recruited from the hospital or the patient’s home by healthcare professionals. Results: A total of 62 people participated in the study between May and June 2019. The needs expressed were analysed and then grouped into categories: access to medical care (especially at home), management of physical symptoms (analgesia) and psychological symptoms, organisation of care (coordination between healthcare professionals) and training of healthcare professionals (pain management, palliative care, interculturality and translation), taking into account cultural and religious aspects. Regarding the foreign population, the categories were: improving access to healthcare, access to the social protection system and daily living conditions (transport, food and accommodation). Conclusions: The specific needs of the population, assessed through the study, have led to an original proposal, which differs from the usual structures of palliative care in France.

Keywords: palliative care; patient preference; caregivers; needs assessment; health personnel; Indian Ocean Islands; Comoros; cultural competency (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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