Communication about Prognosis and End-of-Life in Heart Failure Care and Experiences Using a Heart Failure Question Prompt List

Lisa Hjelmfors, Jan Mårtensson, Anna Strömberg, Anna Sandgren, Maria Friedrichsen and Tiny Jaarsma
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Lisa Hjelmfors: Department of Health Medicine and Caring Sciences, Linköping University, 581 83 Linköping, Sweden
Jan Mårtensson: Department of Nursing, School of Health and Welfare, Jönköping University, 551 11 Jönköping, Sweden
Anna Strömberg: Department of Health Medicine and Caring Sciences, Linköping University, 581 83 Linköping, Sweden
Anna Sandgren: Center for Collaborative Palliative Care, Department of Health and Caring Sciences, Linnaeus University, 351 95 Växjö, Sweden
Maria Friedrichsen: Palliative Education & Research Centre, Vrinnevi Hospital, 601 82 Norrköping, Sweden
Tiny Jaarsma: Department of Health Medicine and Caring Sciences, Linköping University, 581 83 Linköping, Sweden

IJERPH, 2022, vol. 19, issue 8, 1-10

Abstract: Background: To further advance the use of a heart-failure-specific question prompt list (HF-QPL) for communication about prognosis and end-of-life care, knowledge about such communication and the perceptions and experiences of professionals is needed. Objectives: 1. to describe health care professionals’ perceptions of communication about prognosis and end-of-life in heart failure (HF) care, and 2. to describe their experiences of using a HF-QPL. Design: A qualitative design that analyzed material from written assignments of nurses and physicians who were using a HF-QPL while participating in a communication course. Methods: Fifteen health care professionals from different regions in the south of Sweden were included. The data were collected from course assignments on 1. their reflection on the suitable timepoint for talking about prognosis for the first time, 2. their reflection on the HF-QPL, and 3. their experiences of using the HF-QPL in clinical practice. Data were analyzed using thematic analysis. Results: Five overarching themes were identified. The first theme was awareness of professional role responsibilities that described the recognition of different responsibilities in these conversations within the HF team. The second theme described the importance of being optimally prepared, and the third that confidence and skills are required to use the HF-QPL. The fourth theme described the HF-QPL as a bridge in the communication between professionals, patients, and family members. The fifth theme identified challenges using the HF-QPL in HF care. Conclusions: Using a HF-QPL in HF care has the potential to start conversation and facilitate discussion about the HF trajectory.

Keywords: palliative care; question prompt list; heart failure (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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