Having a Say in Research Directions: The Role of Community Researchers in Participatory Research with Communities of Refugee and Migrant Background

Fran Hearn, Laura Biggs, Stephanie Brown, Lien Tran, Sherinald Shwe, Ta Mwe Paw Noe, Shadow Toke, May Alqas Alias, Maryaan Essa, Shogoufa Hydari, Josef Szwarc and Elisha Riggs
Additional contact information
Fran Hearn: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Laura Biggs: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Stephanie Brown: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Lien Tran: Department of Medicine, The University of Melbourne, Melbourne 3052, Australia
Sherinald Shwe: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Ta Mwe Paw Noe: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Shadow Toke: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
May Alqas Alias: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Maryaan Essa: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Shogoufa Hydari: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia
Josef Szwarc: The Victorian Foundation for Survivors of Torture Inc., Brunswick 3056, Australia
Elisha Riggs: Murdoch Children’s Research Institute, Intergenerational Health, Melbourne 3052, Australia

IJERPH, 2022, vol. 19, issue 8, 1-14

Abstract: Research teams in high-income countries often fail to acknowledge the capacity and contributions of Community Researchers. This qualitative exploratory study used decolonising methodology and the Foundation House ‘Refugee Recovery Framework’ to understand Community Researchers’ perceptions and experiences of their role, and how research teams can integrate the knowledge they bring into research. Purposive sampling was used to facilitate the recruitment of eight Community Researchers from five different community groups working in Melbourne, Victoria. Semi-structured interviews lasting forty to sixty minutes occurred between December 2020 and January 2021. Data were analysed using reflexive thematic analysis. Findings reported in this paper include eight themes: ‘nothing about us without us’; ‘open the door’; a safe space to share; every step of the way; this does not translate; finding the right way to ask; a trauma-informed approach; and support within the workplace. The knowledge obtained demonstrates that Community Researchers facilitate meaningful participation in research for women, families, and communities of refugee or migrant background. Community Researchers’ presence, knowledge, and skills are vital in establishing culturally safe research practices and developing accessible language to facilitate conversations about sensitive research topics across multiple languages. Community Researchers can make important contributions at all stages of research, including data collection and interpretation.

Keywords: community researcher; trauma-informed research; cross cultural research; refugee health; migrant health; decolonising methodology (search for similar items in EconPapers)
JEL-codes: I I1 I3 Q Q5 (search for similar items in EconPapers)
Date: 2022
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